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Home ELSI Knowledge Base Common challenges

Common challenges

Hands-on guidance and practical answers for your biobanking research project challenges.

Challenge

Digitalisation of Biobanks

Overview The digitalisation of biobanks refers to the transformation of traditional biobanking infrastructures into integrated digital ecosystems capable of collecting, managing, storing, sharing, and analyzing large volumes of biological and […]

Challenge

Vulnerability in Biomedical Research: a Broad Spectrum

Learn here about how biomedical research can interact with existing vulnerabilities or, even, create new ones Overview Vulnerability is a concept intended to protect individuals and groups who face an […]

Challenge

Reimbursement and Compensation to research participants

What to consider when deciding whether to reimburse and/or compensate research participants in clinical research Overview The practice of offering reimbursement and compensation to research participants in clinical research is […]

Challenge

Ethics Advisors and Ethics Advisory Boards. Roles and Function in EU-funded Projects

This document provides guidance for the beneficiary to appoint an external independent Ethics Advisor or Board and to specify composition and mandate. The appointment of an Ethics Advisor or Ethics Board can be voluntarily proposed by the applicant in their application or can be obligatory as a result of the Ethics Review.

Challenge

Preparation of a new project: what to do with data?

This scenario will take you step-by-step through the process of preparing a new project

Challenge

Responses to data requests

This scenario shows how a researcher can respond to requests concerning personal data

Challenge

How to manage personal data in a new project

This scenario shows how a researcher who is leading a new project has to manage personal data
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Topics

DPIAs (Data Protection Impact Assessments) (2) Biobanking with Children (2) Enhancing Patient Engagement in Oncology Research (1) Digital ELSI services for cancer research (1)

Challenges

Digitalisation of Biobanks Vulnerability in Biomedical Research: a Broad Spectrum Reimbursement and Compensation to research participants Ethics Advisors and Ethics Advisory Boards. Roles and Function in EU-funded Projects Preparation of a new project: what to do with data? Responses to data requests How to manage personal data in a new project

Keywords

paediatrics (2)
ELSI (7)

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