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Home ELSI Knowledge Base

ELSI Knowledge Base

The ELSI Knowledge Base is our open-access resource platform containing information on ELSI-related matters relevant to biobanking. Here you will find practical guidance on specific ELSI topics. In need of ethical, legal, or societal guidance? Browse our articles below.

Our top picks for today

Topic

International data sharing: MTA, DTA

What to consider when drafting Material Transfer Agreements and Data Transfer Agreements.

Topic

Incidental findings

A collection of resources on incidental findings

Latest content

Article

Ethics Advisors and Ethics Advisory Boards. Roles and Function in EU-funded Projects

This document provides guidance for the beneficiary to appoint an external independent Ethics Advisor or Board and to specify composition and mandate. The appointment of an Ethics Advisor or Ethics Board can be voluntarily proposed by the applicant in their application or can be obligatory as a result of the Ethics Review.

Article

Ethics Appraisal Procedure

The Horizon Europe Framework Programme sets high expectations in relation to scientific excellence of which ethical standards are an integral part. The Grant Agreement states:  ‘The action must be carried […]

Article

Biobanking with children – Resources and Good Practices

Learn here about a participatory approach to biobanking with children

Article

DPIA Tools and Resources

Browse here our selection of DPIA tools and resources
Open filters

Topics

DPIAs (Data Protection Impact Assessments) (2) Biobanking with Children (2) Incidental findings (1)

Challenges

Ethics Advisors and Ethics Advisory Boards. Roles and Function in EU-funded Projects Ethics Appraisal Procedure Preparation of a new project: what to do with data? Biobanking with children: A step-by-step engagement process Responses to data requests How to manage personal data in a new project

Keywords

paediatrics (2)
ELSI (4)

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