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Webinar: Biobanks and scientific research – scientific opportunities and challenges for privacy


What regulatory, privacy, and secondary use aspects due researchers need to consider when using patient data for research purposes? In this online panel discussion (held in Italian), speakers Dr. Ilaria Anna Colussi (BBMRI-ERIC - Data Protection Specialist), Laura Liguori (Portolano Cavallo Partner) and Elisa Stefanini (Portolano Cavallo Partner) address the main challenges researchers are facing regarding […]

Webinar: The case of data reuse – ethical, legal, and societal issues in international genomic data access and sharing


Health data collected in cohort studies help researchers generate knowledge generation and advance biomedical research. But what happens when these data are used for something other than the initial purpose? In this webinar, BBMRI social scientist Dr. Melanie Goisauf and health lawyer Emmanuelle Rial-Sebbag address  ethical, legal, and societal questions regarding the sensitivity of genomic […]

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