If we want researchers to be able to produce reliable findings, we need to make sure that they have access to samples and data of appropriate, defined quality. As a European research infrastructure, our ultimate goal is to make samples comparable across different countries and different biobanking systems.
How does the EU General Data Protection Regulation affect health research? Have I addressed all the relevant topics in the compulsory ethics self-assessment section of my proposal? If you have any questions concerning legislation or any other ethical topics, we have a team of experts from all over Europe that offer guidance on ethical, legal, and societal issues (ELSI) that biobankers and researchers may encounter.
GDPR Code of Conduct for Health Research
Now that the new EU General Data Protection Regulation has entered into force, there are a lot of question marks around the use of data in health research. For this reason, BBMRI-ERIC has launched an initiative to draft a code of conduct for health research.
Find samples and data online
We are operating the world’s largest biobank catalogue – the BBMRI-ERIC Directory. Anyone can use it to identify candidate biobanks to get access to samples and data sets.
An online tool for users to negotiate access to samples and datasets with biobanks. The Negotiator focuses on making communication between a high number of requesters and biobanks as efficient as possible.
An online tool to locate samples and datasets hosted by biobanks that are of interest to the requesters. The Locator will allow for detailed, privacy-preserving, multi-criteria search of samples and data sets, while also respecting the degree of control required by the biobank infrastructure operators.