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ADOPT BBMRI-ERIC Project Deliverables
D1.1 Setup of all bodies like the international Advisory Committee, etc.
D1.2 Release of the project specific website, and adaption of the internal communication platform and mailing lists
D1.3 Implementation of performance, outcome and impact indicators
D1.4 Annual report
D1.5 Reports of the Advisory Committee meetings
D1.6 Final report
D2.1 Procedure and checklist for on-site visit evaluation
D2.2 List of qualified EU biobanks
D2.3 List of data, services, technologies/technological platforms for each Country
D2.4 Data set on samples from colorectal cancer patients
D2.5 Data matrix for characterisation of diseases
D2.6 Performance indicators for biobanks
D2.7 Patient-related data for colorectal cancer samples
D3.1 Consolidated registry of BBMRI-ERIC biobanks
D3.2 Security and privacy architecture
D3.3 User interface for collection of the colon cancer cases and database
D3.5 Ontology-based toolset for mapping of the biobanking terminologies. First revision Mo 18. Second Revision M30.
D3.6 Biobank connector specification and reference connector implementation
D4.1 Harmonised access procedure to samples and data
D4.2 Report on harmonised cost recovery process
D4.3 Report on return to investment models
D4.4 Reports on the access procedure
D4.5 Implementation of new ELSI tools, notably procedure to enhance public debate
D5.1 Booklet describing processes and tools in place for the operation of the Common Service ELSI for its users
D5.2 Annual workshops & reports and possible consensus statements on specific topics
D5.3 Operational platform for sharing experience
D5.4 Formal certification according to relevant standards
D5.5 Report on educational and training events and tools
D5.6 Stakeholder Forum Meeting Report
D5.7 Ethical Governance Framework and ethics check for ADOPT BBMRI-ERIC
D6.1 Guideline for biobanks to comply with EU in vitro diagnostics regulation
D6.2 Handbook for biobanks to meet users’ needs for biomarker discovery, development and validation
D6.3 IT-tool for monitoring compliance of biobanks with CEN TS for molecular diagnostics examinations - lead by BBMRI.fi
D6.4 Best practice document for optimal usage of omics technologies for biomarkers
D6.5 Letter of Interest of founding members of a Biomarker Expert Centre Lead by BBMRI.at
D6.6 Collaboration agreement with other ESFRI-BMS research infrastructures, IMI and national biomarker programs
D7.1 Reports from meetings of the coordination activity
D7.2 Registry/biobank support service/ Help-desk facility
D7.3 Harmonised quality standards
D7.4 Governance model for the sustainability of RD biobanks
D7.5 RD Biobank section in BBMRI-ERIC catalogue
D7.6 Report of the Pilot Study
D7.7 Implementation of the RD Common Service
D8.1 Report of country mapping in the field of biobanking
BBMRI-ERIC Documents
EFPIA, EATRIS, ELIXIR, BBMRI, ECRIN statement on the role of research infrastructures to boost patient-centred research and innovation in Europe (July 2019)
BBMRI-ERIC Vision Paper (Nov 2018)
BBMRI-ERIC, EATRIS, ECRIN joint statement on Horizon Europe (Sept 2018)
BBMRI-ERIC Comments on Consultation WP259 and WP260 (Consent & Transparency) (Jan 2018)
Guidance Booklet on how to join BBMRI-ERIC (Jan 2018)
BBMRI-ERIC Access Policy (Nov 2017)
BBMRI-ERIC Partner Charter (Nov 2017)
BBMRI-ERIC reply to European Commission public consultation on health and care in the Digital Single Market (Nov 2017)
BBMRI-ERIC CS ELSI Workshop Report: Biobanking: Ethical and Legal Issues (Jun 2017)
BBMRI-ERIC Code of Conduct Webinar (Apr 2017)
The EU General Data Protection Regulation, Answers to Frequently Asked Questions 2.0 (Mar 2017)
Ethics Review of European Biobank Research: Towards Mutual RECognition? (Sep 2016)
BBMRI ELSI Workshop Report: Sharing and access to data and human biospecimens for the benefit of patients – Towards a BBMRI-ERIC Policy (Sep 2015)
Contribution to the draft WMA Declaration on ethical considerations regarding health databases and biobanks (Jun 2015)
Comments on the draft Council of Europe's Recommendation (2006)4 on research on biological materials of human origin (Aug 2014)
Position Paper on the General Data Protection Regulation (Oct 2015)
BBMRI-ERIC Associated Expert Centres/Trusted Partners (Oct 2015)
Approval process for BBMRI-ERIC (Oct 2015)
BBMRI-ERIC White Paper (Sep 2014)
Biobanks and the Public (2013)
BBMRI Business Plan (Dec 2012)
BBMRI Stakeholder's Forum Meeting Report: A Step Closer (Jun 2010)
BBMRI Stakeholder's Forum Meeting Report: Building a Biobanking Research Infrastructure for Europe (Sep 2009)
BBMRI Stakeholder's Forum Meeting Report (Mar 2009)
BBMRI Position Paper on the GDPR (2015)
BBMRI-ERIC Statutes
BBMRI-ERIC Statutes Rev2 EN (Nov 2016)
BBMRI-ERIC Statutes Rev2 BG (Nov 2016)
BBMRI-ERIC Statutes Rev2 CR (Nov 2016)
BBMRI-ERIC Statutes Rev2 CZ (Nov 2016)
BBMRI-ERIC Statutes Rev2 DE (Nov 2016)
BBMRI-ERIC Statutes Rev2 DK (Nov 2016)
BBMRI-ERIC Statutes Rev2 EE (Nov 2016)
BBMRI-ERIC Statutes Rev2 ES (Nov 2016)
BBMRI-ERIC Statutes Rev2 FI (Nov 2016)
BBMRI-ERIC Statutes Rev2 FR (Nov 2016)
BBMRI-ERIC Statutes Rev2 GR (Nov 2016)
BBMRI-ERIC Statutes Rev2 HU (Nov 2016)
BBMRI-ERIC Statutes Rev2 IT (Nov 2016)
BBMRI-ERIC Statutes Rev2 LT (Nov 2016)
BBMRI-ERIC Statutes Rev2 LV (Nov 2016)
BBMRI-ERIC Statutes Rev2 MT (Nov 2016)
BBMRI-ERIC Statutes Rev2 NL (Nov 2016)
BBMRI-ERIC Statutes Rev2 PL (Nov 2016)
BBMRI-ERIC Statutes Rev2 PT (Nov 2016)
BBMRI-ERIC Statutes Rev2 RO (Nov 2016)
BBMRI-ERIC Statutes Rev2 SE (Nov 2016)
BBMRI-ERIC Statutes Rev2 SK (Nov 2016)
BBMRI-ERIC Statutes Rev2 SL (Nov 2016)
BBMRI-ERIC Work Programmes
BBMRI-ERIC Annual and Financial Reports
Standard Contracts (e.g., MTA/DTAs)
Scientific Publications
Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research (2019)
Leveraging European infrastructures to access 1 million human genomes by 2022 (2019)
Balancing data protection and research needs in the age of the GDPR (2019)
Pre-analytical processes in medical diagnostics: New regulatory requirements and standards (2019)
Quality management at the national biobanking level – establishing a culture of mutual trust and support: the BBMRI.at example (2019)
Mind the Gap: From Tool to Knowledge Base (2018)
Rulemaking in the US (2018)
STAT3, stem cells, cancer stem cells and p63 (2018)
p63 isoforms in triple-negative breast cancer: ΔNp63 associates with the basal phenotype whereas TAp63 associates with androgen receptor, lack of BRCA mutation, PTEN and improved survival (2018)
Host-dependent variables: The missing link to personalized medicine (2018)
Four simple recommendations to encourage best practices in research software (2017)
Biobanking of Human Biospecimens – Principles and Practice (2017)
A combination of routine blood analytes predicts fitness decrement in elderly endurance athletes (2017)
Microbiology Managers: Managerial Training in the RItrain Project (2017)
The impact of the EU general data protection regulation on scientific research (2017)
We must urgently clarify data-sharing rules (2017)
Organization of BBMRI.pl: The Polish Biobanking Network (2017)
BBMRI-ERIC Directory: 515 Biobanks with Over 60 Million Biological Samples (2016)
The alliance between genetic biobanks and patient organisations: the experience of the telethon network of genetic biobanks (2016)
Toward Global Biobank Integration by Implementation of the Minimum Information About BIobank Data Sharing (MIABIS 2.0) (2016)
Design and Implementation of the Advanced Cloud Privacy Threat Modeling (2016)
Performance Indicators for BBMRI-ERIC (2016)
Harmonising and linking biomedical and clinical data across disparate data archives to enable integrative cross-biobank research (2016)
Security and privacy requirements and secure storage architecture (2016)
D8.1 Requirements specification for data harmonisation and terminology mapping tools (2016)
D8.2: Overview Document on Already Existing Data Harmonisation Tools (2016)
Analysis of requirements on biobank and study workflows (2016)
Consolidated Registry of BBMRI-ERIC Biobanks (2016)
Security toolset release for BBMRI-ERIC (2016)
Implementation of the BBMRI-ERIC architecture and database (2016)
Time-course pattern of blood 25-hydroxycholecalciferol is a significant predictor of survival outcome in metastatic colorectal cancer: a clinical practice-based study, in: Neoplasma (2015)
Biobanks in Europe - Seeking for Tissue, Funding and Regulations (2015)
Sharing and Reuse of Sensitive Data and Samples: Supporting Researchers in Identifying Ethical and Legal Requirements (2015)
Biobanking from the patient perspective (2015)
Biobank registries in Europe struggle with similar challenges (2015)
Developing a guideline to standardize the citation of bioresources in journal articles (CoBRA) (2015)
Toward a common language for biobanking (2015)
The donor as partner (2014)
BBMRI-ERIC as a resource for pharmaceutical and life science industries: the development of biobank-based Expert Centres (2014)
ERIC: a new governance tool for Biobanking (2014)
Minimum information about a protein affinity reagent (MIAPAR) (2010)
Biobanking for Europe (2008)
BBMRI-ERIC in the Media
Nature: Genomics: data sharing needs an international code of conduct (5 Feb 2020)
GenomeWeb: Finnish Biobank Cooperative Launches Service to Make Samples, Data Available to Researchers
ZWT Newsletter: Von 0 auf 100 Millionen in 5 Jahren (4 November 2019)
NETZWERT: Far more than "just" collecting samples - feature on BBMRI-ERIC and BBMRI.at (1 October 2019)
APA: Europäische Biobanken: Archiv für die Medizin der Zukunft (12 Aug 2019)
LabsExplorer: Research infrastructures and facilities across Europe for a scientist to know (15 July 2019)
Amid GDPR Implementation, European Effort Drafts Code of Conduct for Sharing Health Research Data (25 Oct 2018)
Scrutinizing the EU General Data Protection Regulation (4 May 2018)
*Research Europe: Group plans guidance on personal data use (Feb 2017)
woche.at Lange Nacht der Forschung im ZWT (Apr 2016)
medianet.at: Biobanken im weltweiten Netz - page 71 (Jan 2016)
The Irish Times: Tissue storage could help to identify risks of pre-eclampsia (Jan 2016)
Nature Magazine: European medical research escapes stifling privacy laws (Dec 2015)
Netzwert Magazine: Graz ist "City of Biobanking" (Oct 2015)
H2020 Project Magazine: Adopting a Gateway for Health (Jul 2015)
The Irish Times: New data protection rules threaten vital health research. (20 Jul 2015)
Nature Magazine: Data overprotection. Draft European rules governing privacy threaten to hamper medical research. (23 Jun 2015)
Biomedcentral.com: Developing a guideline to standardize the citation of bioresources in journal articles (CoBRA). (17 Feb 2015)
sciencedirect.com: Privacy Threat Modeling for Emerging BiobankClouds (2014)
Medizin-Aspekte.de: Nationales Biobanken-Symposium stärkt die Zusammenarbeit in der Biobanken-Forschung (3 Dec 2014)
ISS.it: Lo stato dell'arte delle Infrastrutture per la Ricerca traslazionale in un convegno all'ISS (28 Nov 2014)
WHO.int: A call for global governance of biobanks (24 Nov 2014)
Nature.com: BBMRI-ERIC as a resource for pharmaceutical and life science industries: the development of biobank-based Expert Centres (19 Nov 2014)
QuotidianoSanita.it: Conferenza Stato-Regioni/1. Il testo del Piano nazionale malattie rare 2013-2016 (13 Oct 2014)
ScienceDirect.com: The locked genomes: A perspective from Arabia (28 Sep 2014)
Lääkärilehti.fi: Biopankkien yhteistyö tuo mahdollisuuksia potilaiden yksilölliseen hoitoon (25 Sep 2014)
Nature.com: International Charter of principles for sharing bio-specimens and data (24 Sep 2014)
ScienceDirect.com: Privacy Threat Modeling for Emerging BiobankClouds (15 Sep 2014)
H2020 Newsroom Editor: Biospecimens beyond Borders (1 Jul 2014)
Le Monde: Les biobanques, l'outil d'une médecine sur-mesure (16 Jun 2014)
Nature Magazine: On the up. The soaring incidence of diabetes is driving the United Arab Emirates' science ambitions (15 Feb 2012)
Medical Device Network.com: BBMRI. The Industry Perspective (4 Oct 2010)
Pharmaceutical Technology: New breakthroughs? You can biobank on it (4 Aug 2010)
Nature Magazine Editorial: Biobanks need pharma (24 Sep 2009)
Euractiv: EU 'biobank' first to benefit from VAT exemption (17 Sep 2009)
Time Magazine: 10 Ideas Changing the World Right Now. 8. Biobanks (12 Mar 2009)
Press Releases
Europe Biobank Week 2019 (Oct 2019)
BBMRI-ERIC, EATRIS, ECRIN joint press release: Horizon Europe (Sept 2018)
Europe Biobank Week 2018 (28 Nov 2017)
BBMRI-ERIC Negotiator: Europas Biobank-Hauptquartier BBMRI-ERIC launcht von Graz aus revolutionäre Plattform! (1 March 2017)
ISC, BBMRI-ERIC’s contribution to health research capacity building in Africa (Mar 2017)
ISC, Summary Report on the BBMRI-ERIC Working Meeting on Health and Life Sciences GDPR Code of Conduct (22 Feb 2017)
CORDIS, BBMRI-ERIC seminar: "BBMRI-ERIC's role and contribution to the implementation of the Cloud" (17 Jan 2017)
ISC, A big step towards personalised medicine: CBmed appointed first Expert Centre of European Biobanks; (18 Jul 2016)
CORDIS, Europe Biobank Week: Bringing the European biobanking community together to discuss health innovation; 13-16 September 2016 (4 Jul 2016)
IBBL, A new plasma quality control assay for metabolomics (21 Jun 2016)
APA, Europäisches Biobanken-Netzwerk streckt Fühler nach Afrika aus (16 Jun 2016)
ISC, Data science poised to unlock major health discoveries in Ireland and Europe (7 Jan 2016)
CORDIS, UK joins the EU's biobanking research infrastructure (15 Jul 2015)
CORDIS, BBMRI-ERIC welcomes the Italian Presidency (9 Jul 2014)
CORDIS, BBMRI-ERIC report highlights the need for biobanks to engage with the public (1 Jul 2014)
CORDIS, Commissioner Geoghegan-Quinn awards ERIC nameplate to BBMRI (22 Jan 2014)
APA, Biobanken sollen von Graz aus koordiniert werden (20 Sep 2013)
CORDIS, BBMRI awarded with European Research Infrastructure Consortium status (18 Sep 2013)
BBMRI-ERIC 2020 newsletters
BBMRI-ERIC 2019 newsletters
BBMRI-ERIC 2018 newsletters
BBMRI-ERIC 2017 newsletters
BBMRI-ERIC 2016 newsletters
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