Here you can find the BBMRI-ERIC Policy for Access to and Sharing of Biological Samples and Data.
This access policy presents three areas of guidance:
This policy is a binding document for BBMRI-ERIC itself, for BBMRI-ERIC Partner Biobanks, and for any requesters who are seeking access to samples/data from BBMRI-ERIC Partner Biobanks via BBMRI-ERIC.
The Access Policy of BBMRI-ERIC applies also for access to the centrally collected data set of the CRC-Cohort, with the following exception:
Step 3 of the Access Procedure in the case of the CRC-Cohort is handled directly between requester and BBMRI-ERIC. For controlling access to the data set, BBMRI-ERIC has an Access Committee (see Appendix I) comprising all the contributing partner biobanks, in order to ensure the due data release approvals are in place, particularly when releasing pseudonymous (personal) data. After the access is approved by the Access Committee, BBMRI-ERIC signs a DTA with the requester for the use of the data for the particular project. The DTA also transfers liability on the requester to ensure due data security measures when processing the data.
Setup of Access Committee:
Operations of Access Committee and involvement of contributing partner biobanks:
The Access Committee is expected to deliver the decision within 1 month of submitting the request, based on the following procedure:
|The Access Policy was created within ADOPT BBMRI-ERIC, a project that has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 676550.|
BBMRI-ERIC AAI is a common authentication and authorization infrastructure to services provided by BBMRI-ERIC, which facilitates access to the human biological samples and data.
BBMRI-ERIC AAI performs authentication of BBMRI-ERIC users and delivers their attributes (such as group membership and other personal data) necessary for authorization decisions to be done by
BBMRI-ERIC services relying on it.
Here you can find the Acceptable Use Policy of BBMRI-ERIC Services (v1.1, 2017-08-23)
These usage conditions must be accepted by any authenticated User of any BBMRI-ERIC Service dealing with personal data or anonymized data (for example, but not limited to, BBMRI-ERIC Locator and BBMRI-ERIC Negotiator)
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