The Patients and Citizens Pillar is one of three pillars of the BBMRI-ERIC Stakeholder Forum. It brings together patient organisations from across Europe to contribute the perspectives and interests of patients and citizens to the development of the research infrastructure.
The Pillar focuses on three key areas: data and digital solutions, informed consent, and patient involvement and engagement. Its members contribute to discussions and initiatives spanning biobanking, wider pan-European projects, ethics and governance.
Currently, the Pillar includes 36 patient organisations from 18 BBMRI-ERIC Member States and Observers alongside 9 EU-wide patient organisations. Having a broad membership base provides not only enriched discussions but also a good representation of patients’ diverse interests.
All BBMRI-ERIC Member States and Observers are invited to have patient organisations represented in the Stakeholder Forum. Contact our secretariat with inquiries.
The Patients and Citizens Pillar on the BBMRI-ERIC podcast
Listen to a two-part episode looking at the work of the Patients and Citizens Pillar. The episodes include interviews with members who explore why patient advocacy matters and a discussion with Jana Pavlič-Zupanc, Head of Public Affairs at BBMRI-ERIC, and Eric Vermeulen, Chair of the Stakeholder Forum.
Powered by RedCircle
Powered by RedCircle
Impact stories
Several organisations from the Patients and Citizens Pillar have contributed to our impact stories, sharing experiences and perspectives that were brought to life through multimedia . Have a look at the stories below to hear directly from them.
Contributions
Read through publications that highlight the importance of listening to patients and citizens and ensuring their voices help shape decisions in biobanking.
To hear directly from biobankers and patient representatives about patient and public involvement, including the barriers and challenges they face, watch the Stakeholder Forum webinar in the BBMRI-ERIC Academy.
The Stakeholder Forum – Patients and Citizens Pillar at EBW
View photos from the members of the Stakeholder Forum – Patients and Citizens Pillar at Europe Biobank Week throughout the years.
Stakeholder Forum Secretariat
The Secretariat of the Stakeholder Forum supports and coordinates the work of the Forum and connects it directly to the BBMRI-ERIC decision-making process.
