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Home ELSI Knowledge Base All articles

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Article

Digital ELSI services for cancer research

Collection of digital ELSI tools and services for cancer research.

Article

Enhancing Patient Engagement in Oncology Research

In recent years, the role of patients in biomedical research, including biobanking, has evolved from passive participants to active collaborators. This shift toward meaningful patient engagement brings significant benefits to the relevance, quality, and ethical grounding of research.

Article

Ethics Advisors and Ethics Advisory Boards. Roles and Function in EU-funded Projects

This document provides guidance for the beneficiary to appoint an external independent Ethics Advisor or Board and to specify composition and mandate. The appointment of an Ethics Advisor or Ethics Board can be voluntarily proposed by the applicant in their application or can be obligatory as a result of the Ethics Review.

Article

Biobanking with children – Resources and Good Practices

Learn here about a participatory approach to biobanking with children

Article

DPIA Tools and Resources

Browse here our selection of DPIA tools and resources

Article

Minors’ Engagement

The Minors' Engagement as our ELSI Training Ground: An ELSI paradigm shift: RRI maturation with minors

Article

How to go about conducting a DPIA? 

Questions to be asked when conducting a DPIA

Article

Preparation of a new project: what to do with data?

This scenario will take you step-by-step through the process of preparing a new project
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Ethics Advisors and Ethics Advisory Boards. Roles and Function in EU-funded Projects Preparation of a new project: what to do with data? Responses to data requests How to manage personal data in a new project

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