FontsA A
ContrastA A
Newsletter sign-up
I give permission for BBMRI-ERIC to send me their newsletter and emails about subjects which they think may be of interest to me. I can unsubscribe from all emails at any time. I understand that my information will be processed according to BBMRI-ERIC's privacy notice.
Home ELSI Knowledge Base All articles

All articles

Article

Polygenic Risk Scores (PRS)

This article examines the ethical, legal, and social implications of polygenic risk scores by analyzing how their development and use raise challenges around fairness, representativity, validity, communication of probabilistic results, and health equity, with particular attention to the responsibilities of biobanks in recruitment, data governance, consent, return of findings, public trust, and benefit sharing.

Article

Digital ELSI services for cancer research

Collection of digital ELSI tools and services for cancer research.

Article

Enhancing Patient Engagement in Oncology Research

In recent years, the role of patients in biomedical research, including biobanking, has evolved from passive participants to active collaborators. This shift toward meaningful patient engagement brings significant benefits to the relevance, quality, and ethical grounding of research.

Article

Ethics Advisors and Ethics Advisory Boards. Roles and Function in EU-funded Projects

This document provides guidance for the beneficiary to appoint an external independent Ethics Advisor or Board and to specify composition and mandate. The appointment of an Ethics Advisor or Ethics Board can be voluntarily proposed by the applicant in their application or can be obligatory as a result of the Ethics Review.

Article

Biobanking with children – Resources and Good Practices

Learn here about a participatory approach to biobanking with children

Article

DPIA Tools and Resources

Browse here our selection of DPIA tools and resources

Article

Minors’ Engagement

The Minors' Engagement as our ELSI Training Ground: An ELSI paradigm shift: RRI maturation with minors

Article

How to go about conducting a DPIA? 

Questions to be asked when conducting a DPIA
Open filters

Topics

Challenges

Ethics Advisors and Ethics Advisory Boards. Roles and Function in EU-funded Projects Preparation of a new project: what to do with data? Responses to data requests How to manage personal data in a new project

Keywords

DIDN’T FIND WHAT YOU WERE LOOKING FOR?

Ask our team a question


The website was co-funded within ADOPT BBMRI-ERIC, a project that has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 676550.
We use cookies to analyse the traffic on our websites. All personal data is anonymized and not shared with third parties! Click here for more information.
Accept