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Home ELSI Knowledge Base Enhancing Patient Engagement in Oncology Research

Topic: Enhancing Patient Engagement in Oncology Research

This article explores patient engagement in oncology research, detailing its benefits and practical implementation for researchers and biobankers.

This article explores the evolving role of patient engagement in oncology research, highlighting its benefits for research quality and ethics. It details various levels of engagement, from compliance to co-learning, and offers practical steps for researchers and biobankers to foster meaningful collaboration with patients.

Article

Enhancing Patient Engagement in Oncology Research

In recent years, the role of patients in biomedical research, including biobanking, has evolved from passive participants to active collaborators. This shift toward meaningful patient engagement brings significant benefits to the relevance, quality, and ethical grounding of research.
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Topics

DPIAs (Data Protection Impact Assessments) (2) Biobanking with Children (2) Enhancing Patient Engagement in Oncology Research (1)

Challenges

Ethics Advisors and Ethics Advisory Boards. Roles and Function in EU-funded Projects Preparation of a new project: what to do with data? Responses to data requests How to manage personal data in a new project

Keywords

paediatrics (2)
ELSI (6)

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