BBMRI-ERIC ACADEMY – 1ST ELSI SYMPOSIUM: ETHICAL, LEGAL AND SOCIETAL INSIGHTS AND OUTLOOK FOR BIOBANKS AND BIOMEDICAL RESEARCH

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The BBMRI-ERIC, UNIMIB and IARC organised Symposium “Ethical, Legal and Societal Insights & Outlook for Biobanks and Medical Research” was held at the headquarters of the International Agency for Research on Cancer (IARC) in Lyon, France from June 4th to 6th 2024.

Event Highlights

Over the course of two and a half days, the symposium featured seven keynotes and 30 unique presentations, offering cutting-edge perspectives on ethical, legal, and societal implications (ELSI) relevant for biobanks and biomedical research.

Expertise and Topics

The event celebrated the diverse range of ELSI expertise across different countries and disciplines, encompassing interdisciplinary services and research areas such as GDPR compliance, genetic counselling, science and technology studies, ethics, or social sciences.

Structured into eight sessions, the ELSI Symposium addressed a wide range of topics, including data privacy, European Health Data Space (EHDS), ethics of AI, genetics and genomics, gender, governance, regulatory compliance or datafication.

It closed with the Young Researchers Awards for presentations and a poster, reaffirming the commitment to making such gatherings a regular event.

Resources

We’ve captured the essence of the “Ethical, Legal and Societal Insights & Outlook for Biobanks and Medical Research” symposium in an interactive multimedia story, which you can explore here.

Find the symposium proceedings on Zenodo.