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Home  - News & Events Overview  -  New Podcast Episode – ELSI Dialogues: Access and benefit-sharing of Genetic Resources – the Nagoya Protocol applied to biobanks  
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New Podcast Episode – ELSI Dialogues: Access and benefit-sharing of Genetic Resources – the Nagoya Protocol applied to biobanks

This article is 300 words – a two-minute read.

Sharing is caring. This also holds true for biological samples and data as resources for research. Episode 27 of the BBMRI-ERIC podcast explores how the Nagoya Protocol – an international agreement regulating collection, storage and sharing of non-human genetic resources – helps biobankers and researchers to distribute and utilise these resources responsibly.

BBMRI-ERIC Podcast
35 – ELSI Dialogues: Trustworthy by Design: Ethics, Practice and Impact of AI in Cancer Research and Care
byBBMRI-ERIC

The potential of artificial intelligence (AI) to improve cancer diagnostics, treatment plans and patient outcomes is immense, particularly when it comes to medical imaging. But what does it mean for AI to be truly trustworthy in practice? What do experts and patients need to develop trust in such potentially revolutionary new tools and how can we incorporate human needs early-on to ensure AI is trustworthy by design?

In the latest ELSI Dialogues session in October 2025, two invited experts, Macej Bobowicz, MD, PhD (Medical University of Gdansk) and Prof. Karim Lekadir (University of Barcelona), shared their thoughts and expertise on this highly current topic. The session was recorded on 28 October 2025 and moderated by Dr. Melanie Goisauf (BBMRI-ERIC).

Read our website article about the webinar for more details and insights.

About the speakers:

Dr. Maciej Bobowicz (Medical University of Gdańsk)

Dr Maciej Bobowicz is an Assistant Professor at the 2nd Department of Radiology, Medical University of Gdańsk, Poland, and a surgical oncologist specialising in breast cancer diagnostics and treatment. His research focuses on the ethical and clinically responsible use of artificial intelligence in oncology, radiomics, and precision medicine.

He leads or contributes to several EU-funded projects, including EuCanImage, RadioVal, MAYA, Cinderella, TRACE and CAREWAY. He is also part of the AI4HI network, which supports the EUCAIM initiative under Europe’s Beating Cancer Plan. Author of over 80 scientific papers, Dr Bobowicz is committed to advancing patient-centred, trustworthy, and equitable AI applications in cancer imaging and care.

Prof. Karim Lekadir (University of Barcelona)

Karim Lekadir is an ICREA Research Professor in the Department of Mathematics and Computer Science at the University of Barcelona. He obtained his PhD from Imperial College London and was a postdoctoral researcher at Stanford University. He investigates new data science techniques for trustworthy and ethical artificial intelligence in medicine. He has been PI in 15 EU-funded projects, coordinated 6 Horizon projects, and was awarded an ERC Consolidator grant to investigate new AI techniques tailored to resource-limited settings.

Moderator: Melanie Goisauf (BBMRI-ERIC)

Dr. Melanie Goisauf is an accomplished social scientist with a PhD in Sociology (University of Vienna). She also studied at the Royal Holloway University of London and completed the postgraduate programme “Sociology of Social Practices” at the Institute for Advanced Studies (IHS) Vienna. As senior scientist at BBMRI-ERIC she is involved in several research projects and serves on ethical advisory boards. Dr. Goisauf also leads the Ethics of AI Lab, which focuses on the ethical and social implications of artificial intelligence, and is in charge of the scientific coordination of the Horizon Europe project PERIFORMANCE.

35 – ELSI Dialogues: Trustworthy by Design: Ethics, Practice and Impact of AI in Cancer Research and Care
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28 – ELSI Dialogues: Navigating the Future: Legal and IT Challenges, Risks, and Opportunities of AI in Biobanking
8 May 2025
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13 March 2025
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20 December 2024
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6 November 2024
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3 October 2024
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23 – Eva Ortega-Paíno profile: “You cannot be a proper researcher without curiosity and curiosity is not only just for science, it’s for living.”
23 September 2024
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22 – Congress Radio Special: Europe Biobank Week 2023 – Dr Bo Franzén
20 August 2024
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21 – Congress Radio Special: Europe Biobank Week 2024 – Dr Gillian Bartlett, University of Missouri
6 August 2024
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20 – Congress Radio Special: Europe Biobank Week 2024 – Sir Rory Collins, UK Biobank
23 July 2024
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8 July 2024
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18 – Congress Radio: Europe Biobank Week 2024 – Day Four
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15 – Congress Radio: Europe Biobank Week 2024 – Day One
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19 March 2024
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12 – How canSERV can accelerate your cancer research
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“It’s not a secret for anybody that the biodiversity is decreasing on all continents, and this implies a lot of important issues for the day-to-day life of human beings. For a sustainable use of the biodiversity and benefit sharing, the Nagoya protocol was adopted.”

At the heart of the agreement stands the goal to share any benefits that arise from utilisation of these resources in a fair and equitable way between the country/institution that stores and provides the resources and those who use it.

In this recording of our latest ELSI Dialogues session in February 2025, three invited expert speakers joined host Ilaria Colussi, BBMRI-ERIC’s Data Protection Specialist, to share their knowledge and practical experience with the Nagoya protocol. Melania Muñoz Garcia (Leibniz Institute, DSMZ), Josephine Uldry (Swiss Biobanking Platform) and Christian de Guttry (Swiss Institute of Bioinformatics) describe the fundamental basics of the Nagoya Protocol and explore practical examples how the Nagoya protocol is applied in different countries and institutions.

“Compliance with the Nagoya Protocol is not just a legal requirement, but also a powerful tool for promoting fair and equitable sharing of genetic resources.”

One of the main challenges is to change the perception among researchers that compliance to regulations is a bureaucratic burden. In contrast, following the Nagoya Protocol’s guidelines supports ethical and reproducible science with genetic resources, with biobanks as crucial players.

You can also watch this and previous ELSI Dialogues sessions as webinar video recordings on our Youtube channel.

 

Further reading:

  • The Nagoya protocol: https://www.cbd.int/abs/default.shtml
  • The Nagoya protocol at the Leibniz Institute DMSZ website: https://www.dsmz.de/collection/nagoya-protocol
  • The Swiss Institute of Bioinformatics: https://www.sib.swiss/
  • The Swiss Biobanking Platform: https://swissbiobanking.ch/
  • ELSI Dialogues on Youtube: https://www.youtube.com/watch?v=aZA1rVT75to
  • ELSI services: https://www.bbmri-eric.eu/elsi/

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