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Home  - News & Events Overview  -  New Podcast Episode – ELSI Dialogues: Access and benefit-sharing of Genetic Resources – the Nagoya Protocol applied to biobanks  
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New Podcast Episode – ELSI Dialogues: Access and benefit-sharing of Genetic Resources – the Nagoya Protocol applied to biobanks

This article is 300 words – a two-minute read.

Sharing is caring. This also holds true for biological samples and data as resources for research. Episode 27 of the BBMRI-ERIC podcast explores how the Nagoya Protocol – an international agreement regulating collection, storage and sharing of non-human genetic resources – helps biobankers and researchers to distribute and utilise these resources responsibly.

BBMRI-ERIC Podcast
32 – Congress Radio: Europe Biobank Week 2025 – Day Four – Ethics Café, a winning pitch and closing thoughts
byBBMRI-ERIC

Visit day four of the Europe Biobank Week Congress in this mini-series covering the event – part of the BBMRI-ERIC Podcast. 

During these episodes, you’ll experience the congress as it happens in Bologna, Italy from 13-16 May 2025. You’ll get a flavour of the event from interviews with organisers, speakers and delegates. If you missed day three, find it at Europe-biobank-week-dot-eu.

EBW is a yearly congress jointly organised between BBMRI-ERIC and ESBB. It unites over 800 biobankers, researchers, industry specialists and decision makers for keynotes, workshops, industry talks and parallel sessions over four days.

This final episode, recorded on 16 May, is when congress winds down but the pace is no slower with a vibrant Ethics Café, a set of parallel sessions and the closing ceremony. 

Contributors to the episode, as they appear, are:

  • Dr. Jörg Hamann, Amsterdam University Medical Center
  • Dr. Gesine Richter, University Kiel
  • Prof. Prof. Roland Jahns, Universitätsklinikum Würzburg
  • Prof. Ali Kilic, Izmir Biomedicine And Genome Center
  • Mariona Arañó Loyo, Fundació Sant Joan de Déu
  • Dr. Maria Grazia Cerrito, University of Milano Bicocca
  • Dr. Mindaugas Morkunas, Vilnius University Hospital Santaros Klinikos
  • Elsa Roland, Oslo University Hospital
  • Patrick Skowronek, German Cancer Research Center (dkfz)

Links:

  • Sant Joan de Déu: https://www.sjdhospitalbarcelona.org/en
  • Closing ceremony award recipients: https://www.europebiobankweek.eu/ebw-news/ebw25-live/ebw25-live-closing-ceremony/
  • Europe Biobank Week: https://www.europebiobankweek.eu
  • BBMRI-ERIC: https://www.bbmri-eric.eu
  • ESBB: https://esbb.org
32 – Congress Radio: Europe Biobank Week 2025 – Day Four – Ethics Café, a winning pitch and closing thoughts
32 – Congress Radio: Europe Biobank Week 2025 – Day Four – Ethics Café, a winning pitch and closing thoughts
17 May 2025
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31 – Congress Radio: Europe Biobank Week 2025 – Day Three – Participants, Posters and EP PerMed
16 May 2025
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30 – Congress Radio: Europe Biobank Week 2025 – Day Two – Scientific Programme Launch
15 May 2025
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29 – Congress Radio: Europe Biobank Week 2025 – Day One – Workshops
14 May 2025
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28 – ELSI Dialogues: Navigating the Future: Legal and IT Challenges, Risks, and Opportunities of AI in Biobanking
8 May 2025
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27 – ELSI Dialogues: The Nagoya Protocol applied to Biobanks
13 March 2025
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26 – ELSI Dialogues: Artificial Intelligence in South-Eastern Asia – The Indonesian National Artificial Intelligence Strategy on Ethics and Policy
20 December 2024
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25 – ELSI Dialogues: Communicating with patient citizens on implementing the European Health Data Space (EHDS)
6 November 2024
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24 – canSERV: Training the Next Generation of Cancer Researchers
3 October 2024
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23 – Eva Ortega-Paíno profile: “You cannot be a proper researcher without curiosity and curiosity is not only just for science, it’s for living.”
23 September 2024
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22 – Congress Radio Special: Europe Biobank Week 2023 – Dr Bo Franzén
20 August 2024
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21 – Congress Radio Special: Europe Biobank Week 2024 – Dr Gillian Bartlett, University of Missouri
6 August 2024
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20 – Congress Radio Special: Europe Biobank Week 2024 – Sir Rory Collins, UK Biobank
23 July 2024
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19 – 10th anniversary impact stories – part two
8 July 2024
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18 – Congress Radio: Europe Biobank Week 2024 – Day Four
19 May 2024
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17 – Congress Radio: Europe Biobank Week 2024 – Day Three
16 May 2024
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16 – Congress Radio: Europe Biobank Week 2024 – Day Two
15 May 2024
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15 – Congress Radio: Europe Biobank Week 2024 – Day One
14 May 2024
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14 – 10th anniversary impact stories – part one
15 April 2024
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13 – Prof. Walter Ricciardi on an urgent case for science: “For the first time, the dams that shaped our security are trying to break.”
19 March 2024
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12 – How canSERV can accelerate your cancer research
4 December 2023
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11 – ELSI Dialogues: Organoids – Scientific, ethical and regulatory aspects
15 November 2023
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10 – ELSI Dialogues: The Incorporation of Sex and Gender in Medical Research
31 October 2023
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09 – Biobanking Development: Amsterdam UMC’s International Freezer Challenge Win and Carbon Literacy
27 October 2023
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08 – ELSI Dialogues: Introduction to the Belgian Biobank Legislation – A Piece of the Puzzle in the Complicated EU Regulatory Landscape
13 July 2023
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07 – What is a Patient Pillar? Eric Vermeulen, New Chair, Explains – Part Two
28 June 2023
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06 – What is a Patient Pillar? How Patient Representatives are Shaping BBMRI-ERIC and Biobanking – Part One
28 June 2023
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“It’s not a secret for anybody that the biodiversity is decreasing on all continents, and this implies a lot of important issues for the day-to-day life of human beings. For a sustainable use of the biodiversity and benefit sharing, the Nagoya protocol was adopted.”

At the heart of the agreement stands the goal to share any benefits that arise from utilisation of these resources in a fair and equitable way between the country/institution that stores and provides the resources and those who use it.

In this recording of our latest ELSI Dialogues session in February 2025, three invited expert speakers joined host Ilaria Colussi, BBMRI-ERIC’s Data Protection Specialist, to share their knowledge and practical experience with the Nagoya protocol. Melania Muñoz Garcia (Leibniz Institute, DSMZ), Josephine Uldry (Swiss Biobanking Platform) and Christian de Guttry (Swiss Institute of Bioinformatics) describe the fundamental basics of the Nagoya Protocol and explore practical examples how the Nagoya protocol is applied in different countries and institutions.

“Compliance with the Nagoya Protocol is not just a legal requirement, but also a powerful tool for promoting fair and equitable sharing of genetic resources.”

One of the main challenges is to change the perception among researchers that compliance to regulations is a bureaucratic burden. In contrast, following the Nagoya Protocol’s guidelines supports ethical and reproducible science with genetic resources, with biobanks as crucial players.

You can also watch this and previous ELSI Dialogues sessions as webinar video recordings on our Youtube channel.

 

Further reading:

  • The Nagoya protocol: https://www.cbd.int/abs/default.shtml
  • The Nagoya protocol at the Leibniz Institute DMSZ website: https://www.dsmz.de/collection/nagoya-protocol
  • The Swiss Institute of Bioinformatics: https://www.sib.swiss/
  • The Swiss Biobanking Platform: https://swissbiobanking.ch/
  • ELSI Dialogues on Youtube: https://www.youtube.com/watch?v=aZA1rVT75to
  • ELSI services: https://www.bbmri-eric.eu/elsi/

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