elsi
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New podcast episode – ELSI Dialogues: The role of biobanks in realising the One Health approach
New podcast episode ELSI Dialogues: The role of biobanks in realising the One Health approach “One Health is fundamentally about cooperation.” On 24 March 2026, three expert speakers joined us for a new ELSI Dialogues webinar to discuss the role biobanks can play in realising the One Health strategy. With moderator Mónica Cano Abadia, Josephine Uldry, Jakob…
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ELSI Dialogues: Trustworthy by Design: Ethics, Practice and Impact of AI in Cancer Research and Care
The potential of artificial intelligence (AI) to improve cancer diagnostics, treatment plans and patient outcomes is immense, particularly when it comes to medical imaging. But what does it mean for AI to be truly trustworthy in practice? What do experts and patients need to develop trust in such potentially revolutionary new tools and how can…
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New Podcast Episode – ELSI Dialogues: Empowering Voices – Enhancing Patient Engagement in Oncology Research – Experiences, Challenges and Pathways to Inclusion
“No one has to reinvent the wheel in their work, but we need more visibility for the often invisible work, working with patients and the benefits this has for research.” (Melanie Goisauf) In June’s BBMRI-ERIC ELSI Dialogues session, a vivid experts’ discussion covered concepts and practical means to effectively utilise the potential of patients’ unique…
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BBMRI-ERIC ACADEMY – 1ST ELSI SYMPOSIUM: ETHICAL, LEGAL AND SOCIETAL INSIGHTS AND OUTLOOK FOR BIOBANKS AND BIOMEDICAL RESEARCH
The BBMRI-ERIC, UNIMIB and IARC organised Symposium “Ethical, Legal and Societal Insights & Outlook for Biobanks and Medical Research” was held at the headquarters of the International Agency for Research on Cancer (IARC) in Lyon, France from June 4th to 6th 2024. Event Highlights Over the course of two and a half days, the symposium…
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BBMRI-ERIC ACADEMY SYMPOSIUM: Ethical, Legal, and Societal Aspects in View of Recent EU Legislation
SAVE THE DATE This two-day event provides a rich, interdisciplinary learning experience guided by experts in the field of ethics, law, social science, philosophy or arts. Date: 22-23. October 2025 Where: Bilbao, Spain Registration is closed. 🔗 Programme Sessions SESSION 1: The European Health Data Space (EHDS). General Overview SESSION 2: Bringing…
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ELSI team addresses trust, value and gender aspects of AI and infrastructures at the 4S 2023 conference
This article is 540 words and is an approximate 4-minute read BBMRI-ERIC’s ELSI team presented the scientific outcomes of several EU projects on trust, value and gender aspects of infrastructures and organised a panel session on AI at the 4S 2023 conference in Honolulu, Hawaii hosted by the Society for Social Studies of Science (4S) from November 8 to 11.…
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Two new ELSI genomic research relevant publications released
The BBMRI-ERIC ELSI team are delighted to share two new genomic research relevant publications: Published in BioSocieties, ‘Post-identifiability in changing sociotechnological genomic data environments‘ explores the meaning of privacy in an increasingly datafied research environment in which the authors analysed genomic identifiability as a systematic data issue and argue that a new conceptualisation is needed. This…
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New podcast episode: ELSI Dialogues – Why ELSI Matters!
“I think an ELSI expert is often seen as a patch for projects from the natural sciences. You can ask this ELSI expert anything that has to be solved in a certain way, it has to be a yes or no answer, then it’s done and you never have to talk about it again.” This…
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BBMRI-ERIC Presents Research: FAB & WCB 2022
BBMRI-ERIC representatives Dr. Mónica Cano Abadía (ELSI / Senior Scientist & Gender, Equality & Diversity Specialist) and Dr. Melanie Goisauf (ELSI / Senior Scientist) contributed to more dialogue between gender studies and AI ethics researchers at the recent Congress of the Feminist Approaches to Bioethics (FAB) (18-19 July) and the 16th World Congress of Bioethics (WCB) in Basel, Switzerland…
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Virtual Round Table #4: Quality – What’s missing when things don’t work as they should?
“Get to know the European and Chinese landscape in Personalised Medicine-biobanking with special focus on the common intersections data/Ethical, Legal and Societal Issues (ELSI)/quality” – that is the credo for the 4 upcoming Virtual Round Tables! What should you expect? Our VRTs will present the European and Chinese perspective/challenges and future trends of four very…
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Virtual Round Table #3: ELSI — Four Letters – Do They Matter?
“Get to know the European and Chinese landscape in Personalised Medicine-biobanking with special focus on the common intersections data/Ethical, Legal and Societal Issues (ELSI)/quality” – that is the credo for the 4 upcoming Virtual Round Tables! What should you expect? Our VRTs will present the European and Chinese perspective/challenges and future trends of four very…