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Home ELSI Knowledge Base

ELSI Knowledge Base

The ELSI Knowledge Base is our open-access resource platform containing information on ELSI-related matters relevant to biobanking. Here you will find practical guidance on specific ELSI topics. In need of ethical, legal, or societal guidance? Browse our articles below.

Our top picks for today

Topic

International data sharing: MTA, DTA

What to consider when drafting Material Transfer Agreements and Data Transfer Agreements.

Topic

Incidental Findings

Explore resources relating to the informed management of incidental findings

Latest content

Article

Digital ELSI services for cancer research

Collection of digital ELSI tools and services for cancer research.

Article

Enhancing Patient Engagement in Oncology Research

In recent years, the role of patients in biomedical research, including biobanking, has evolved from passive participants to active collaborators. This shift toward meaningful patient engagement brings significant benefits to the relevance, quality, and ethical grounding of research.

Article

Ethics Advisors and Ethics Advisory Boards. Roles and Function in EU-funded Projects

This document provides guidance for the beneficiary to appoint an external independent Ethics Advisor or Board and to specify composition and mandate. The appointment of an Ethics Advisor or Ethics Board can be voluntarily proposed by the applicant in their application or can be obligatory as a result of the Ethics Review.

Article

Biobanking with children – Resources and Good Practices

Learn here about a participatory approach to biobanking with children
Open filters

Topics

DPIAs (Data Protection Impact Assessments) (2) Biobanking with Children (2) Enhancing Patient Engagement in Oncology Research (1)

Challenges

Ethics Advisors and Ethics Advisory Boards. Roles and Function in EU-funded Projects Preparation of a new project: what to do with data? Responses to data requests How to manage personal data in a new project

Keywords

paediatrics (2)
ELSI (6)

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