Organised by BBMRI-ERIC
Industry – Academia – Healthcare professionals
CPDP, the Computers, Privacy and Data Protection 2018 conference is taking place in Brussels between the 24th and 26th January. We are pleased to announce that BBMRI-ERIC is going to host a session on the 26th between 8:30 and 10:00 a.m. in the La Cave room.
Chair: Michaela Th. Mayrhofer, BBMRI-ERIC (AT)
Presenter: Annelies Debucquoy, Belgian Cancer Registry (BE)
Speakers: Evert-Ben van Veen, Medlawconsult (NL); Anastassia Negrouk, EORTC (BE); Alastair Kent, Ambassador, Genetic Alliance (UK); other speakers tbc
The GDPR was influenced by contingent political priorities that risked creating unwanted effects on health research. The final result is acceptable, but many issues related to health research remain unanswered. The Code of Conduct for Health Research, born from a collaboration of more than 90 research organisations, aims at filling the gaps to guarantee data collection and sharing that enable and enhance health research while respecting patient/citizen rights. Experts and stakeholders will discuss the Code, underlining its added value and suggesting amelioration/critiques to it. The audience will have the chance to engage with the panelists and the Code’s authors.