The ELSI Helpdesk Network | BBMRI-ERIC: Making New Treatments Possible
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The ELSI Helpdesk Network

The ELSI Helpdesk Network comprises of a number of support services and experts across the BBMRI network that assist researchers and research infrastructures with ethical, legal and societal questions.

Through the Network, assistance is offered on ELSI topics that are crucial in biobanking and biomedical research, such as informed consent and data protection, amongst others. By sharing expertise, initial orientation is provided so you can navigate your way through the ethical and legal landscape on both a national and European level.

Belgium

BBMRI.be

Estonia

Dr Liis Leitsalu
Estonian Genome Center, Institute of Genomics
University of Tartu

France

Biobanques - BBMRI.fr

Greece

Dr. Olga Tzortzatou
IP & Data Consultant
Biomedical Research Foundation of the Academy of Athens

Latvia

Dr. Signe Mezinska
Associate Professor, Faculty of Medicine
Senior Researcher, Institute of Clinical and Preventive Medicine
University of Latvia

Malta

Dr Bridget Ellul
Member Research Ethics Committee, Faculty of Medicine & Surgery
University of Malta
Member Health Ethics Committee

Norway

Helpdesk ELSI
Biobank Norway

Poland

Dr Dorota Krekora-Zajac
Legal Counsel
Assistant Professor at the Department of Comparative Civil Law
University of Warsaw

United Kingdom

Regulatory Support Centre
The Medical Research Council

Czech Republic

Mgr. Radek Halouzka
Chief Legal Officer
Masaryk Memorial Cancer Institute (MMCI)

Finland

Tom Southerington
General Counsel
Finnish Biobank Cooperative – FINBB

Germany

German Biobank Node - BBMRI.de

Italy

BBMRI.it

Malta

Dr. Gillian Martin
Chair, Faculty of Arts Research Ethics Committee
University of Malta

The Netherlands

ELSI Servicedesk
BBMRI.NL, The Netherlands Cancer Institute, COREON-Federa

Poland

Dr Jakub Pawlikowski
Associate Professor
Department of Human Ethics and Philosophy
Medical University of Lublin

Sweden

ELSI Helpdesk
Biobank Sweden

Get in Touch

Do you have an ELSI-related question?

For general enquiries, email BBMRI-ERIC at: elsi@helpdesk.bbmri-eric.eu

If your question concerns regulation and ELSI practices in a specific country, please contact one of the ELSI national contact points located in BBMRI Member Countries above, which provide dedicated expertise concerning ethical and regulatory issues related to their respective national legislative framework. The list above contains all relevant contact details for national ELSI support.

 

How does it work?

If you have emailed us at elsi@helpdesk.bbmri-eric.eu at BBMRI-ERIC, you will receive an automatic confirmation of receipt. Your enquiry will then be assessed and reviewed by our team. Given the customised nature of the ELSI Helpdesk, we may need to contact you in order to obtain further information. Your enquiry is tracked from beginning to end.

Given that different countries have different regulatory frameworks, we draw from local expert knowledge in order to effectively address your enquiry. We may also connect you to a locally based organisation with the relevant expertise.

If you have chosen to contact a listed contact point within the ELSI Helpdesk Network, your enquiry will be processed in accordance with their respective operating procedures.

 

Who is it for?

The service is available to researchers and biobanks, as well as any research infrastructures working in the field of biomedical research, that are located in Member and Observer Countries of BBMRI-ERIC. You are eligible for support provided:

  • you are involved or are set to be involved in a research activity related to biobanking; or
  • you are a research infrastructure in the field of biomedical research; and
  • you are located in a Member or Observer Country of BBMRI-ERIC. Please click here to check whether your country is a Member or Observer.*

 

What happens after we respond?

Much of the information generated from the ELSI Helpdesk will also be beneficial to the wider biobanking community.

As a publicly funded research infrastructure, it is important that any knowledge generated is shared. Therefore, responses issued through the ELSI Helpdesk may be used to feed into the ELSI Knowledge Base, an open access resource platform.

Any personal and confidential details will of course be removed.

 

What is it not?

Any information provided by the ELSI Helpdesk is not legal advice. As a research infrastructure, BBMRI-ERIC provides a public service by providing expertise and sharing knowledge regarding ELSI issues for the use and benefit of the biobanking community.

Information offered by the ELSI Helpdesk represents one view on the particular ELSI issue raised. It is not intended and should not be taken as the only view on the respective matter.

Professional legal advice should always be obtained before taking or refraining from any action as a result of information provided by the ELSI Helpdesk.

Additional Information

The ELSI Helpdesk is co-funded within ADOPT BBMRI-ERIC, a project that has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 676550.

The ELSI Helpdesk is co-funded within CORBEL, a project that has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 654248.


The website was co-funded within ADOPT BBMRI-ERIC, a project that has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 676550.
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