The ELSI Helpdesk is a personalised support service assisting researchers and research infrastructures who have ethical, legal and societal questions.
We help you to identify relevant ELSI issues and offer assistance on topics that are crucial in biobanking and biomedical research, such as informed consent and data protection, amongst others.
By sharing expertise, we provide you with initial orientation and assist you in navigating your way through the ethical and legal landscape.
Do you have an ELSI-related question? If so, please email*: firstname.lastname@example.org
*Please provide us with an abstract of the project when sending your enquiry where applicable, as well as any other relevant information.
Upon sending an email, you will receive confirmation of receipt. Your enquiry will then be assessed and reviewed by the ELSI Helpdesk Review Board, which meets on a monthly basis to discuss incoming ELSI enquiries. Given the customised nature of the ELSI Helpdesk, we may need to contact you in order to obtain further information.
Given that different countries have different regulatory frameworks, we draw from local expert knowledge in order to effectively address your enquiry. We may also connect you to a locally based organisation with the relevant expertise.
Your enquiry is tracked from beginning to end.
The service is available to researchers and biobanks, as well as any research infrastructures working in the field of biomedical research, that are located in Member and Observer Countries of BBMRI-ERIC. You are eligible for support provided:
Much of the information generated from the ELSI Helpdesk will also be beneficial to the wider biobanking community.
As a publicly funded research infrastructure, it is important that any knowledge generated is shared. Therefore, responses issued through the ELSI Helpdesk may be used to feed into the ELSI Knowledge Base, an open access resource platform that is currently under development.
Any personal and confidential details will of course be removed.
Any information provided by the ELSI Helpdesk is not legal advice. As a research infrastructure, BBMRI-ERIC provides a public service by providing expertise and sharing knowledge regarding ELSI issues for the use and benefit of the biobanking community.
Information offered by the ELSI Helpdesk represents one view on the particular ELSI issue raised. It is not intended and should not be taken as the only view on the respective matter.
Professional legal advice should always be obtained before taking or refraining from any action as a result of information provided by the ELSI Helpdesk.
The ELSI Helpdesk is co-funded within ADOPT BBMRI-ERIC, a project that has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 676550.
The ELSI Helpdesk is co-funded within CORBEL, a project that has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 654248.