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Stakeholder Forum

What is the BBMRI-ERIC Stakeholder Forum?

 

The BBMRI-ERIC Stakeholder Forum is the main interface for European patients’ organisations, civil society, industry and academia to interact with the biobanking universe.

The role of stakeholders is enshrined in the BBMRI-ERIC statutes: as one of the advisory boards, the Stakeholder Forum contributes to the decision-making process of BBMRI-ERIC, together with the Scientific and Ethical Advisory Board (SEAB).

See BBMRI-ERIC Governance

Through the Stakeholder Forum, we want to build a sustainable, egalitarian relationship between the biobank community and its stakeholders. The objective is to increase each other’s awareness on needs and expectations on key issues related to biobanking, such as data protection, informed consent in health research, health research priorities, and other ethical, legal and societal issues (ELSI).

How did the Stakeholder Forum evolve?

 

Stakeholders have been involved in BBMRI-ERIC since the very inception of BBMRI-ERIC back in 2009. Patients’ organisations/civil society groups already working on biobanking issues showed a sincere interest in BBMRI-ERIC and contributed to the development of the research infrastructure.

 

Stakeholder Forum Members

 

 

Stakeholder Forum Secretariat

 

The Secretariat of the Stakeholder Forum supports and coordinates the work of the Forum, and connects it directly to the BBMRI-ERIC decision-making process.

Stakeholder Forum Chair

Alastair Kent

Chief Policy Officer CS ELSI / Chief Coordination Officer

Michaela Th. Mayrhofer

Engagement Officer

Francesco Florindi

Additional Information

Stakeholder Forum Intranet (SharePoint)

 

Click here to log in to the Stakeholder Forum SharePoint.


This website was co-funded within ADOPT BBMRI-ERIC, a project that has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 676550.
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