elsi dialogues
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ELSI Dialogues – From Participation to Partnership: Patient Engagement in Cancer Care and Research in Algeria and India
Meaningful patient engagement is increasingly recognised as essential to making cancer care and research more responsive to the needs, experiences and priorities of people affected by cancer. However, translating this principle into practice requires trust, inclusive approaches and sustained collaboration between patients, healthcare professionals, researchers, and cancer organisations. This webinar will explore practical experiences of…
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New Podcast Episode – ELSI Dialogues: Participatory cancer research and regulation in Middle-Income Countries
“This discussion is crucial! Recognising that patients are indispensable to research does not necessarily mean that they participate in the governance of the research and the agenda. This would be an important shift from research on or about patient to research with patients.” September’s BBMRI-ERIC ELSI Dialogues session brought together experts from selected middle-income countries…
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ELSI Dialogues: Cancer survivorship at the core of research
Cancer survivorship at the core of research: How lived experiences can inform research and policy decisions in the Era of the EU Cancer Mission Date/Time: June 3, 2026. H 10.30/11.30 CEST – ONLINE (ZOOM) 🔗 Register here Description Cancer survivorship is rapidly emerging as a central dimension of contemporary oncology, reflecting not only advances…
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New podcast episode – ELSI Dialogues: The role of biobanks in realising the One Health approach
New podcast episode ELSI Dialogues: The role of biobanks in realising the One Health approach “One Health is fundamentally about cooperation.” On 24 March 2026, three expert speakers joined us for a new ELSI Dialogues webinar to discuss the role biobanks can play in realising the One Health strategy. With moderator Mónica Cano Abadia, Josephine Uldry, Jakob…
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ELSI Dialogues: Trustworthy by Design: Ethics, Practice and Impact of AI in Cancer Research and Care
The potential of artificial intelligence (AI) to improve cancer diagnostics, treatment plans and patient outcomes is immense, particularly when it comes to medical imaging. But what does it mean for AI to be truly trustworthy in practice? What do experts and patients need to develop trust in such potentially revolutionary new tools and how can…
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Trustworthy by Design: Ethics, Practice, and Impact of AI in Cancer Research and Care
Trustworthy by Design: Ethics, Practice, and Impact of AI in Cancer Research and Care Description: Trustworthy AI has become a central concept in the ethical development and application of artificial intelligence in medicine. In cancer research, particularly in imaging, the potential of AI to improve diagnostics, treatment planning, and patient outcomes is immense. But what…
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New Podcast Episode – ELSI Dialogues: Empowering Voices – Enhancing Patient Engagement in Oncology Research – Experiences, Challenges and Pathways to Inclusion
“No one has to reinvent the wheel in their work, but we need more visibility for the often invisible work, working with patients and the benefits this has for research.” (Melanie Goisauf) In June’s BBMRI-ERIC ELSI Dialogues session, a vivid experts’ discussion covered concepts and practical means to effectively utilise the potential of patients’ unique…
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New Podcast Episode – ELSI Dialogues: Navigating the Future: Legal and IT Challenges, Risks, and Opportunities of AI in Biobanking
“The technology is there. What is not there immediately, is how to use the technology properly.” Prof. Marco Montali In episode 28 of the BBMRI-ERIC podcast, Ilaria Colussi, Data Protection Officer at BBMRI-ERIC, and two guest experts discuss legal and technical aspects of using AI tools for biobanking. How can AI help modern biobanking? How…
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New Podcast Episode – ELSI Dialogues: Access and benefit-sharing of Genetic Resources – the Nagoya Protocol applied to biobanks
Sharing is caring. This also holds true for biological samples and data as resources for research. Episode 27 of the BBMRI-ERIC podcast explores how the Nagoya Protocol – an international agreement regulating collection, storage and sharing of non-human genetic resources – helps biobankers and researchers to distribute and utilise these resources responsibly. Powered by RedCircle…
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Navigating the Future: Legal and IT Challenges, Risks, and Opportunities of AI in Biobanking
Navigating the Future: Legal and IT Challenges, Risks, and Opportunities of AI in Biobanking – ELSI Dialogues session The integration of Artificial Intelligence (AI) into biobanking presents transformative opportunities for research, diagnostics, and personalised medicine. However, this technological evolution also introduces complex legal, regulatory, and technical challenges. Join us for an engaging and interactive webinar…
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Access and benefit-sharing of Genetic Resources: the Nagoya Protocol applied to biobanks
Access and benefit-sharing of Genetic Resources: the Nagoya Protocol applied to biobanks The fair and equitable sharing of benefits from genetic resources—known as Access and Benefit-Sharing (ABS)—is a key principle in global research and innovation. Governed by the Nagoya Protocol, this international framework ensures compliance and fair use of genetic material, with 141 countries on…
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New Podcast Episode – ELSI Dialogues: Artificial Intelligence in South-Eastern Asia – The Indonesian National Artificial Intelligence Strategy on Ethics and Policy
“AI systems need to be human centric, they should serve humanity and the common good” Episode 26 takes you to a webinar on developing strategies for a trustworthy AI explored at the example of South-eastern Asia. After a quick introduction on how the European Union approaches this challenge, Thilma Komaling, one of the authors of…