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Cyprus and Qatar join BBMRI-ERIC as full and observer members

This article is 931 words and a three-minute read. Cyprus and the State of Qatar have been officially confirmed as members of the Biobanking and BioMolecular resources Research Infrastructure – European Research Infrastructure Consortium (BBMRI-ERIC). Cyprus moved from Observer to full Member and the State of Qatar has joined as an Observer. Membership was approved…

22 February, 2023
New podcast episode: ELSI Dialogues – Why ELSI Matters!

“I think an ELSI expert is often seen as a patch for projects from the natural sciences. You can ask this ELSI expert anything that has to be solved in a certain way, it has to be a yes or no answer, then it’s done and you never have to talk about it again.” This…

15 February, 2023
Estonian Biobank and Nightingale Health complete initial phase of collaboration by profiling 250 metabolites from 200,000 blood samples

In 2021, the Estonian Biobank (EstBB) entered into a collaboration with the Finnish health tech company Nightingale Health Oy (Nightingale). The initial phase of this partnership has been now successfully completed; this involved profiling up to 250 metabolites from plasma samples of 200,000 EstBB participants. The addition of comprehensive biomarker data to the EstBB collection…

23 January, 2023
The team at Auria Biobank, Finland, achieves ISO 20387:2020 accreditation

This article is 739 words – a four-minute read. The team at Auria Biobank, part of Turku University Hospital’s Laboratory Division, have achieved ISO 20387:2020 accreditation. This makes Auria the fourth BBMRI-ERIC member biobank to demonstrate quality to this international standard. Andrea Wutte, Head of Quality Management at BBMRI, said of the accreditation: “It is a pleasure to see the…

18 January, 2023
BBMRI.bg hosts Biomedical research infrastructures – drivers of the genome and personalised medicine in Bulgaria

A two-day national forum “Biomedical research infrastructures – drivers of the genome and personalised medicine in Bulgaria” was held on 9th and 10th of December in Sofia. Prof. Radka Kaneva, coordinator of the BBMRI National Node, and Head of Molecular Medicine Center at Medical University of Sofia, moderated the meeting. It was organised by the National University Complex of Biomedical and…

17 January, 2023
New BBMRI-ERIC podcast episode: Exploring the Lightweight Distributed Provenance Model for Complex Real–world Environments – biobanking, medical research data and reproducibility

“We realised we needed to start something new to address the medical research reproducibility crisis.” The latest episode of the BBMRI-ERIC podcast is now available. It explores a paper that was recently published in Nature which illustrates a lightweight distributed provenance model designed for complex, real-world, environments. The paper has been researched and written by a…

13 January, 2023
Quality Talk: José Antonio López-Guerrero of IVO Biobank on achieving ISO 20387

This article is 1,787 words, an eight-minute read. In August 2022, the team at IVO Biobank in Spain became the first in the BBMRI-ERIC network to achieve ISO 20387:2018. This is the standard for biobanks to demonstrate “competence, impartiality and consistent operation including quality control requirements to ensure biological material and data collections of appropriate quality”. Andrea Wutte (AW), Head…

19 December, 2022
CELSPAC opening highlights biobanking’s importance for European climate policy

The recent opening of the CELSPAC Biobank at RECETOX, Masaryk University in Brno, Czech Republic, offered a 360 degree understanding of how the evolving Horizon 2020 programme, with a focus on biobanking, is being realised on the ground. Climate emergency policy In the face of the growing climate emergency, the European Commission’s Horizon 2020 strategy is increasingly focusing…

15 December, 2022
Giuseppe Ippolito – General Director for Research and Innovation in Healthcare – Ministry of Health – closes BBMRI-ERIC Paediatrics event

Highly regarded epidemiologist and General Director for Research and Innovation in Healthcare at the Italian Ministry of Health, Giuseppe Ippolito, spoke in depth on the value of cooperation, challenges of data sharing and importance of RIs at the close of BBMRI-ERIC and ESBB’s paediatrics workshop. The event took place in Rome from 13-14 October and…

14 November, 2022
ESBB and BBMRI-ERIC formalise closer collaboration

Prof. Jens Habermann, Director General of the Biobanking and BioMolecular Research Infrastructure (BBMRI-ERIC),and Dr. Dominik Lermen, Outgoing President of The European, Middle Eastern & African Society for Biopreservation and Biobanking (ESBB), signed a historic memorandum of understanding between their organisations at the recent Europe Biobank Week (EBW) Roadshow Meeting & Exhibit in Regensburg, Germany. Strengthening collaboration ESBB,…

14 November, 2022
Biobank Väst In Sweden Achieves Quality Label

Biobank Väst at Sahlgrenska University Hospital (Gothenburg, Sweden) has become the first Nordic biobank within BBMRI-ERIC’s network to receive a Quality Label according to ISO 20387:2018. Linda Paulson, Head of Unit at Biobank Väst said: “The Quality Label is proof that we meet the requirements of the standard and also the laws and regulations that govern biobanking.” Biobank…

2 November, 2022
Strengthening collaboration between BBMRI-ERIC and the Nordic biobanks – conference report

Professor Jens Habermann, Director General, Dr. Michaela Th. Mayrhofer, Head of ELSI, and Dr. Manuela Pausen, Scientific Stakeholder Specialist, recently attended the first Nordic Biobank Conference in Gothenburg, Sweden. The conference presented a unique opportunity to meet representatives in the field of human biobanking as well as other scientific experts from healthcare, academic, and industry sectors. Current trends and…

6 October, 2022

Privacy & Cookie policy

Privacy & Cookies policy

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1. Legal Information

Your data will be processed exclusively based on EU GDPR, DSG and TKG.

In accordance with Article 4 (7) of the EU General Data Protection Regulation, the controller is:

BBMRI-ERIC
Director General: Jens K. Habermann, M.D., Ph.D.
Neue Stiftingtalstraße 2/B/6
8010 Graz, Austria
Phone: +43 316 34 99 17-0
Email: contact@bbmri-eric.eu

2. Information and data

We store from you the data required for the fulfilment of our business relationship. These include the following data categories: Names, contact details, Name of employees or bodies (Contact Person) including contact details, Address Data, IBAN, BIC, Contract Data. We do not process sensitive data. The data will be deleted by us as soon as storage is no longer necessary/ statutory after VAT retention periods have expired.
Passing on to third parties will only take place after your respective consent has been obtained or to contractually bound contract processors, see also Chapter 6.
To the extent permissible under applicable law, we use your information to provide any information and services that you have requested; to send you newsletters only after your consent; to manage our business relationship with you (for example, customer services and support activities); to monitor, measure, improve and protect our website, applications and services provided; and to undertake internal testing of our website, applications, systems and services in order to verify and improve their security and performance. In these circumstances, we would anonymise any information used for such testing purposes, provide you with any information that we are required to send you in compliance with our regulatory or legal obligations;
We will retain your personal information for the duration of our business relationship and afterwards for as long as is necessary and relevant for our legitimate business purposes as permitted by applicable laws and regulation. Where we no longer need your personal information, we will dispose of it in a secure manner (without further notice to you).

3. Collection of personal data when visiting our website at bbmri-eric.eu

Coding: This site uses SSL or TLS encryption for security and privacy reasons. An encrypted connection can be recognised the browser’s address bar being changed to “https://” and the lock icon in the address bar. If the encryption is enabled, the data you submit to us cananot be read by third parties.
Contact: When you contact us by mail or via the contact form, we store the data you provided (Email-Address, Name, Message) to answer your question. We will delete the data arising in this connection after the storage is no longer required or restrict the processing, if statutory retention periods exist.
Informative Use of the Website: In the case of mere informational use of the website, i.e. if you do not provide us with any other information, we only collect the personal data that your browser transmits to our server. If you wish to view our website, we collect the following information that is technically necessary for us to display our website and to ensure its stability and safety. (Legal basis is the Art. 6 (1) p.1 lit. f of General Data Protection Regulation):
- IP address, date and time of request
- Time zone difference to Greenwich Mean Time (GMT)
- Content of the request (concrete page); access status/HTTP status code
- Each transferred amount of data, website from which the request comes
- Browser – operating system and its surface
- Language and version of the browser software
Cookies: In addition to the mentioned data, cookies are stored on your computer when you use our website. Cookies are small text files stored on your hard drive that are associated with the browser you used, and they provide certain information to the body (us) that sets the cookie. Cookies cannot run programs or transmit viruses to your computer. They serve to make the Internet offer more user-friendly and effective. This website uses the following types of cookies:
- Transient cookies are automatically deleted when you close the browser. These include session cookies. These store so-called session-IDs, with which different requests from your browser can be assigned to the common session. This will allow your computer to be recognised when you return to our website. The session cookies are deleted when you log out or close the browser.
- Persistent cookies are automatically deleted after a specified period, which may differ depending on the cookie. You can delete the cookies in the security settings of your browser at any time.
- You can configure your browser setting according to your wishes and for example, reject all the acceptance of third-party cookies or all cookies. If so, please be aware that you may not be able to use all features of this website.

4. Web analytics

BBMRI-ERIC uses one Jetpack services to analyse how users interact with web services provided, in order to collect anonymised statistical evidence of utilisation of BBMRI-ERIC services, and to improve user experience.

Jetpack uses “cookies”, which are text files placed on your computer, to help the website analyse how users use the websites, applications or services. The information generated by the cookie about your use of the websites, applications or services (including your IP address) will be transmitted to and stored by Jetpack on servers worldwide. Jetpack provides this information within the BBMRI-ERIC website for the purpose of evaluating your use of the site, applications or services. It compiles reports on website activity for website operators. Jetpack will not associate your IP address with any other data held by them. You may refuse the use of cookies by selecting the appropriate settings on your browser or within the application, however, please note that if you do this you may not be able to use the full functionality of this website. By using our website, applications or services you consent to the processing of data about you by Jetpack in the manner and for the purposes set out above.

5. Integration of Google maps

On this website we sparingly use Google Maps. Thus we are able to show you interactive maps directly on the website, allowing you comfortable use of the map function. Via your visit to the website, Google obtains information that you activated the respective sub-page of our website. Furthermore, the data listed under this paragraph, are transmitted.

This takes place, irrespective of whether Google provides a user account that you use to log in or whether there is no user account. If you are logged into Google, your data will be directly assigned to your account. If you do not wish assignment via your profile at Google, you must log out prior to activation of the button. Google stores your data as user profile and uses it for the purpose of advertising, market research and/or needs-based design of their website. This type of evaluation takes place, in particular, (even for users who are not logged in) for providing needs-based advertising and to inform the social network’s other users about your activities on our website. You have the right to object to the generation of these user profiles, whereby you must address Google with regards to exercising this right.

Further information about purpose and extent of data collection and its processing via the plug-in-provider is available in the provider’s data protection declarations. You will also be able to obtain further information regarding your rights in this respect and setting options to protect your privacy here. Google also processes your personal data in the USA and complies with the EU-US Privacy Shield. Our legal basis: Art. 6 para. 1 lit. f.

6. Newsletter

In the event you register to receive our newsletter, we need your name and your email address to provide the service. At any time, you have the right to unsubscribe from further receiving this service. We may use the following third-party service providers named below to process and store your data: Mailchimp (The Rocket Science Group, LLC), which we use to manage email marketing subscriber lists and send emails to our subscribers. Read their privacy policy here.

7. Your rights

You have the following rights with respect to the personal data concerning you: Right to information, correction, deletion, limitation of processing, objection to processing and the right of data portability. You also have the right to complain to the regulator, which is the Austrian data protection authority: Austrian Data Protection Authority, Wickenburggasse 8, A-1080 Vienna, Phone: +43 1 52 152-0, Email: dsb@dsb.gv.at, www.dsb.gv.at

For questions regarding your rights, contact our data protection officer (DPO) at dpo@bbmri-eric.eu

8. Contact

(e.g. for opposition to processing, requests for information)

BBMRI-ERIC
Neue Stiftingtalstraße 2/B/6
8010 Graz, Austria
Phone: +43 316 34 99 17-0
Mail: contact@bbmri-eric.eu

Note: The use of published contact data for the transmission of unsolicited advertising and information materials is hereby rejected. The operators of the pages expressly reserve the right to take legal action in the event of the unsolicited sending of advertising information, for example through spam emails.