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  • logos of the different patient advocacy organisations

    BBMRI-ERIC and the Stakeholder Forum Patient Pillar release co-written statement in support of EHDS opt-out meeting

    This article is 1745 words and is an approximate ten minute read. The following statement, co-written by BBMRI-ERIC and the Stakeholder Forum Patient Pillar, has been made in support of the EHDS opt-out meeting that happened on 6 September 2023. Details can be found here. The purpose of this statement is to highlight the risks and…

  • A tile of images showing biobanking activities and teams from the new member and observers

    Denmark, Lithuania and Switzerland join BBMRI-ERIC as Full and Observer Members

    Denmark, Lithuania and Switzerland have been officially confirmed as members of the Biobanking and BioMolecular resources Research Infrastructure – European Research Infrastructure Consortium (BBMRI-ERIC). Lithuania and Switzerland moved from Observers to full Members and Denmark joined as an Observer. Membership was approved by the BBMRI-ERIC Assembly of Members in June 2023 with membership status officially…

  • New podcast and video: ELSI Dialogues – An Introduction to the Belgian Biobank Legislation

    Introduction Biobank legislation is not harmonised at the European Union level, and the Member States have taken considerably divergent approaches in how they regulate the field. Whereas some countries do not have specific regulations, others have adopted complex biobank laws. This episode of ELSI Dialogues aims to present the unique legal framework for biobanking that…

  • podcast logo of a white microphone on a grey background

    New Podcast Episode: What is a Patient Pillar? How Patient Representatives are Shaping BBMRI-ERIC and Biobanking – Part One

    “Cancer is traumatising, and you want to forget it as soon as possible, but some of us believe our experiences can be useful for others.” This first of a two-part episode looks at the work of the BBMRI Stakeholder Forum Patient Pillar that brings together patient organisations from across Europe to help shape BBMRI’s biobanking…

  • A white man with short fair hair and who wears glasses, a white shirt and black jacket, is smiling at the camera

    New Podcast Episode: What is a Patient Pillar? Eric Vermeulen, New Chair, Explains – Part Two

    “This tissue is really representing the patient and that’s what I find very interesting about biobanking. You don’t need to be there to be in research.” This is the second of a two-part episode exploring the work of the BBMRI Stakeholder Forum Patient Pillar that brings together patient organisations from across Europe to help shape…

  • Lindau 72

    BBMRI-ERIC kicks off 10 year anniversary by supporting young scientists

    This article is 938 words and is a four-minute read. “Cells, surprisingly aesthetic and intricate machines, fine-tuned by evolution, form a basis for the function of our bodies. I enjoy being able to contribute to the discovery of these beautiful processes.” (Katerina Jurikova, young scientist) Inspiring young scientists to utilise biobanking resources for future ground-breaking…

  • The iso logo

    Common Provenance Model: BBMRI led ISO/TS 23494-1:2023 released

    This article is 1,014 words – a ten-minute read. During the last decade, we have witnessed reproducibility issues in life sciences. There is strong evidence that the issues are caused by poor documentation of the samples and data generation techniques applied to the samples to generate data. This is finally being addressed. The BBMRI-ERIC team…

  • logos of those supporting the opt out recommendations

    Joint Statement: Health organisations define EHDS’ opt out required for life saving research

    On 6 June, BBMRI-ERIC joins together with 31 other health stakeholders to share views on specific recommendations for a potential opt-out mechanism in the future EHDS. These organisations and initiatives have joined forces because they all share the view that health data is precious and a renewable resource that can power decision-making for clinical care,…

  • A group of 7 people in casual business clothes stand on a lawn in front of red brick buildings.

    Biobank Łukasiewicz – PORT awarded the BBMRI-ERIC Quality Label

    “Receiving the Quality Label is a very important step for our Biobank in establishing its position, not only in Poland, but also in the wider European biobanking landscape.” Biobank Łukasiewicz – PORT, located in the Łukasiewicz Research Network – PORT Polish Center for Technology Development institute in Wrocław, has been awarded a BBMRI-ERIC Quality Label. The…

  • covers of BioSocieties and European Journal of Human Genetics journal

    Two new ELSI genomic research relevant publications released

    The BBMRI-ERIC ELSI team are delighted to share two new genomic research relevant publications: Published in BioSocieties, ‘Post-identifiability in changing sociotechnological genomic data environments‘ explores the meaning of privacy in an increasingly datafied research environment in which the authors analysed genomic identifiability as a systematic data issue and argue that a new conceptualisation is needed. This…

  • canSERV logo showing a cancer ribbon made from the ten most common kinds of cancer in Europe

    The canSERV project seeks Personalised Oncology and Molecular Tumour Board experts for European networks

    The EU cluster project canSERV is inviting anyone involved in a Molecular Tumour Board (MTB) – e.g., physicians, scientists, patient representatives, ethicists – to join the European Network for Personalised Oncology (ENPO) and its European Molecular Tumour Board Network (EMTBN). The European Network for Personalised Oncology (ENPO) aims to provide state-of-the-art guidance and support to accelerate the implementation of personalised oncology. Through…

  • image showing details of the conserve call release - same info in the article and pdf

    The canSERV Consortium announces its first Challenge-Call on “Advancing Personalised Oncology”.

    Deadline for submission is 25th of April 2023, 12:00 CEST. Cancer Researchers in, and outside, the EU are invited to apply for free access to cutting-edge transnational services with an indicative overall budget of EUR 500,000. The aim of this call is to accelerate knowledge gain in personalised oncology with specific emphasis on multi-level data-based treatment guidance…

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1. Legal Information

Your data will be processed exclusively based on EU GDPR, DSG and TKG.

In accordance with Article 4 (7) of the EU General Data Protection Regulation, the controller is:

BBMRI-ERIC
Director General: Jens K. Habermann, M.D., Ph.D.
Neue Stiftingtalstraße 2/B/6
8010 Graz, Austria
Phone: +43 316 34 99 17-0
Email: contact@bbmri-eric.eu

2. Information and data

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3. Collection of personal data when visiting our website at bbmri-eric.eu

  • Coding: This site uses SSL or TLS encryption for security and privacy reasons. An encrypted connection can be recognised the browser’s address bar being changed to “https://” and the lock icon in the address bar. If the encryption is enabled, the data you submit to us cananot be read by third parties.
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4. Web analytics

BBMRI-ERIC uses one Jetpack services to analyse how users interact with web services provided, in order to collect anonymised statistical evidence of utilisation of BBMRI-ERIC services, and to improve user experience.

Jetpack uses “cookies”, which are text files placed on your computer, to help the website analyse how users use the websites, applications or services. The information generated by the cookie about your use of the websites, applications or services (including your IP address) will be transmitted to and stored by Jetpack on servers worldwide. Jetpack provides this information within the BBMRI-ERIC website for the purpose of evaluating your use of the site, applications or services. It compiles reports on website activity for website operators. Jetpack will not associate your IP address with any other data held by them. You may refuse the use of cookies by selecting the appropriate settings on your browser or within the application, however, please note that if you do this you may not be able to use the full functionality of this website. By using our website, applications or services you consent to the processing of data about you by Jetpack in the manner and for the purposes set out above.

5. Integration of Google maps

On this website we sparingly use Google Maps. Thus we are able to show you interactive maps directly on the website, allowing you comfortable use of the map function.  Via your visit to the website, Google obtains information that you activated the respective sub-page of our website.  Furthermore, the data listed under this paragraph, are transmitted.

This takes place, irrespective of whether Google provides a user account that you use to log in or whether there is no user account.  If you are logged into Google, your data will be directly assigned to your account.  If you do not wish assignment via your profile at Google, you must log out prior to activation of the button.  Google stores your data as user profile and uses it for the purpose of advertising, market research and/or needs-based design of their website.  This type of evaluation takes place, in particular, (even for users who are not logged in) for providing needs-based advertising and to inform the social network’s other users about your activities on our website.  You have the right to object to the generation of these user profiles, whereby you must address Google with regards to exercising this right.

Further information about purpose and extent of data collection and its processing via the plug-in-provider is available in the provider’s data protection declarations.  You will also be able to obtain further information regarding your rights in this respect and setting options to protect your privacy here.  Google also processes your personal data in the USA and complies with the EU-US Privacy Shield.  Our legal basis: Art. 6 para. 1 lit. f.

6. Newsletter

In the event you register to receive our newsletter, we need your name and your email address to provide the service. At any time, you have the right to unsubscribe from further receiving this service. We may use the following third-party service providers named below to process and store your data: Mailchimp (The Rocket Science Group, LLC), which we use to manage email marketing subscriber lists and send emails to our subscribers. Read their privacy policy here.

7. Your rights

You have the following rights with respect to the personal data concerning you: Right to information, correction, deletion, limitation of processing, objection to processing and the right of data portability. You also have the right to complain to the regulator, which is the Austrian data protection authority: Austrian Data Protection Authority, Wickenburggasse 8, A-1080 Vienna, Phone: +43 1 52 152-0, Email: dsb@dsb.gv.at, www.dsb.gv.at

For questions regarding your rights, contact our data protection officer (DPO) at dpo@bbmri-eric.eu

8. Contact

(e.g. for opposition to processing, requests for information)

BBMRI-ERIC
Neue Stiftingtalstraße 2/B/6
8010 Graz, Austria
Phone: +43 316 34 99 17-0
Mail: contact@bbmri-eric.eu

Note: The use of published contact data for the transmission of unsolicited advertising and information materials is hereby rejected. The operators of the pages expressly reserve the right to take legal action in the event of the unsolicited sending of advertising information, for example through spam emails.

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