A promo leaflet for a webinar organised by the BBMRI-ERIC Stakeholder Forum. The leaflet shows the BBMRI-ERIC logo, a description of the content as well as pictures and affiliations of the speakers.
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Webinar: Strengthening Biobanks through Patient and Public involvement

Strengthening Biobanks through Patient and Public involvement Webinar organised by the BBMRI-ERIC Stakeholder Forum Summary: Constant dialogue with patients, caregivers, and the public is a key guiding principle in biobanking and research. Yet, public and patient involvement, often referred to also as research participant involvement, has not become the usual practice in many biobanks. Often, […]

European Conference on Rare Diseases and Orphan Products (ECRD) 2026

Prague & online

Save the date! The next ECRD will be held on 3 & 4 June 2026 in Prague and will be titled “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”.  The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led […]


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