position paper
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Position paper on “Citizen Information Point”
Recommendations from the viewpoint of patient and public advocates and representatives The BBMRI-ERIC Stakeholder Forum – Patients and Citizens Pillar in collaboration with the BBMRI-ERIC team have published a position paper to provide recommendations on the draft guideline of the development and implementation of the “Citizen Information Point” under EHDS Regulation. Article 58 of the EHDS Regulation sets out…
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Position paper on EHDS opt-out
Recommendations from the viewpoint of patient advocates and patient representatives The BBMRI-ERIC Stakeholder Forum – Patients and Citizens Pillar in collaboration with the BBMRI-ERIC team have published a position paper to provide recommendations on the implementation of the opt-out process/mechanism for secondary use under European Health Data Space (EHDS) regulation. EHDS regulation guarantees citizens the…
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European Life Science Research Infrastructures (LS-RIs) Launch FP10 Position Paper
This article is 311 words and is an approximate 2-minute read. The European Life Science Research Infrastructures (LS-RIs) have launched a joint position paper, outlining key messages for the next Framework Programme for Research (FP10): “Driving Innovation and Collaboration: A Strategic Vision for European Life Science Research Infrastructures in Framework Programme 10”. The paper is…
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BBMRI-ERIC Launches FP10 Position Paper
BBMRI-ERIC, the European Research Infrastructure for Biobanking and Biomolecular Resources in Health and Life Science, has launched its position paper on the next Framework Programme (FP10). One of the first research infrastructures to publish such a paper, it outlines six key messages for FP10 (explainer). The paper is timed with the current evaluation of Horizon…