Mariangela Masiello
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Two new ELSI genomic research relevant publications released
The BBMRI-ERIC ELSI team are delighted to share two new genomic research relevant publications: Published in BioSocieties, ‘Post-identifiability in changing sociotechnological genomic data environments‘ explores the meaning of privacy in an increasingly datafied research environment in which the authors analysed genomic identifiability as a systematic data issue and argue that a new conceptualisation is needed. This…
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The canSERV project seeks Personalised Oncology and Molecular Tumour Board experts for European networks
The EU cluster project canSERV is inviting anyone involved in a Molecular Tumour Board (MTB) – e.g., physicians, scientists, patient representatives, ethicists – to join the European Network for Personalised Oncology (ENPO) and its European Molecular Tumour Board Network (EMTBN). The European Network for Personalised Oncology (ENPO) aims to provide state-of-the-art guidance and support to accelerate the implementation of personalised oncology. Through…
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The canSERV Consortium announces its first Challenge-Call on “Advancing Personalised Oncology”.
Deadline for submission is 25th of April 2023, 12:00 CEST. Cancer Researchers in, and outside, the EU are invited to apply for free access to cutting-edge transnational services with an indicative overall budget of EUR 500,000. The aim of this call is to accelerate knowledge gain in personalised oncology with specific emphasis on multi-level data-based treatment guidance…
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Cyprus and Qatar join BBMRI-ERIC as full and observer members
This article is 931 words and a three-minute read. Cyprus and the State of Qatar have been officially confirmed as members of the Biobanking and BioMolecular resources Research Infrastructure – European Research Infrastructure Consortium (BBMRI-ERIC). Cyprus moved from Observer to full Member and the State of Qatar has joined as an Observer. Membership was approved…
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New podcast episode: ELSI Dialogues – Why ELSI Matters!
“I think an ELSI expert is often seen as a patch for projects from the natural sciences. You can ask this ELSI expert anything that has to be solved in a certain way, it has to be a yes or no answer, then it’s done and you never have to talk about it again.” This…
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Estonian Biobank and Nightingale Health complete initial phase of collaboration by profiling 250 metabolites from 200,000 blood samples
In 2021, the Estonian Biobank (EstBB) entered into a collaboration with the Finnish health tech company Nightingale Health Oy (Nightingale). The initial phase of this partnership has been now successfully completed; this involved profiling up to 250 metabolites from plasma samples of 200,000 EstBB participants. The addition of comprehensive biomarker data to the EstBB collection…
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The team at Auria Biobank, Finland, achieves ISO 20387:2020 accreditation
This article is 739 words – a four-minute read. The team at Auria Biobank, part of Turku University Hospital’s Laboratory Division, have achieved ISO 20387:2020 accreditation. This makes Auria the fourth BBMRI-ERIC member biobank to demonstrate quality to this international standard. Andrea Wutte, Head of Quality Management at BBMRI, said of the accreditation: “It is a pleasure to see the…
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BBMRI.bg hosts Biomedical research infrastructures – drivers of the genome and personalised medicine in Bulgaria
A two-day national forum “Biomedical research infrastructures – drivers of the genome and personalised medicine in Bulgaria” was held on 9th and 10th of December in Sofia. Prof. Radka Kaneva, coordinator of the BBMRI National Node, and Head of Molecular Medicine Center at Medical University of Sofia, moderated the meeting. It was organised by the National University Complex of Biomedical and…
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New BBMRI-ERIC podcast episode: Exploring the Lightweight Distributed Provenance Model for Complex Real–world Environments – biobanking, medical research data and reproducibility
“We realised we needed to start something new to address the medical research reproducibility crisis.” The latest episode of the BBMRI-ERIC podcast is now available. It explores a paper that was recently published in Nature which illustrates a lightweight distributed provenance model designed for complex, real-world, environments. The paper has been researched and written by a…
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Quality Talk: José Antonio López-Guerrero of IVO Biobank on achieving ISO 20387
This article is 1,787 words, an eight-minute read. In August 2022, the team at IVO Biobank in Spain became the first in the BBMRI-ERIC network to achieve ISO 20387:2018. This is the standard for biobanks to demonstrate “competence, impartiality and consistent operation including quality control requirements to ensure biological material and data collections of appropriate quality”. Andrea Wutte (AW), Head…
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CELSPAC opening highlights biobanking’s importance for European climate policy
The recent opening of the CELSPAC Biobank at RECETOX, Masaryk University in Brno, Czech Republic, offered a 360 degree understanding of how the evolving Horizon 2020 programme, with a focus on biobanking, is being realised on the ground. Climate emergency policy In the face of the growing climate emergency, the European Commission’s Horizon 2020 strategy is increasingly focusing…
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Giuseppe Ippolito – General Director for Research and Innovation in Healthcare – Ministry of Health – closes BBMRI-ERIC Paediatrics event
Highly regarded epidemiologist and General Director for Research and Innovation in Healthcare at the Italian Ministry of Health, Giuseppe Ippolito, spoke in depth on the value of cooperation, challenges of data sharing and importance of RIs at the close of BBMRI-ERIC and ESBB’s paediatrics workshop. The event took place in Rome from 13-14 October and…