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ELSI Helpdesk

If you have a question that concerns transnational research, contact us.

If your question concerns pharmaceutical regulatory affairs, please contact EATRIS, they will provide you with specific regulatory expertise.

If your question concerns a specific country, please contact one of our national contact points located in BBMRI Member Countries as listed below. They will provide you with country-specific expertise.

Austria

BBMRI.at

Bulgaria

Professor Radka Kaneva, PhD
Executive Manager,
Molecular Medicine Center
Medical University

Estonia

Dr Liis Leitsalu
Estonian Genome Center, Institute of Genomics
University of Tartu

Germany

German Biobank Node - BBMRI.de

Italy

BBMRI.it

Lithuania

To Be Determined

Malta

Dr. Gillian Martin
Chair, Faculty of Arts Research Ethics Committee
University of Malta
gillian.martin@um.edu.mt

Dr Bridget Ellul
Member Research Ethics Committee, Faculty of Medicine & Surgery
University of Malta
Member Health Ethics Committee

Norway

Helpdesk ELSI
Biobank Norway

Sweden

ELSI Helpdesk
Biobank Sweden

United Kingdom

Regulatory Support Centre
The Medical Research Council

Belgium

BBMRI.be

Czech Republic

Mgr. Radek Halouzka
Chief Legal Officer
Masaryk Memorial Cancer Institute (MMCI)

Finland

Tom Southerington
General Counsel
Finnish Biobank Cooperative – FINBB

Sirpa Soini, LL.M
Biobank Director
THL Biobank
The Finnish Institute for Health and Welfare

Contact: Sirpa.Soini@thl.fi

Greece

Dr. Olga Tzortzatou
IP & Data Consultant
Biomedical Research Foundation of the Academy of Athens

Latvia

Dr. Signe Mezinska
Associate Professor, Faculty of Medicine
Senior Researcher, Institute of Clinical and Preventive Medicine
University of Latvia

The Netherlands

ELSI Servicedesk
BBMRI.NL, The Netherlands Cancer Institute, COREON-Federa

Poland

Dr Jakub Pawlikowski
Associate Professor
Department of Human Ethics and Philosophy
Medical University of Lublin

Dr Dorota Krekora-Zajac
Legal Counsel
Assistant Professor at the Department of Comparative Civil Law
University of Warsaw
d.krekora@wpia.uw.edu.pl

Switzerland

Sabine Bavamian
Chief Scientific Officer
Swiss Biobanking Platform

Contact: sabine.bavamian@swissbiobanking.ch

Dorothée Caminiti
Legal and Ethical Officer
Swiss Biobanking Platform

Contact: dorothee.caminiti@swissbiobanking.ch

How does it work?

If you have emailed us at elsi@helpdesk.bbmri-eric.eu at BBMRI-ERIC, you will receive an automatic confirmation of receipt. Your enquiry will then be assessed and reviewed by our team. Given the customised nature of the ELSI Helpdesk, we may need to contact you in order to obtain further information. Your enquiry is tracked from beginning to end.

Given that different countries have different regulatory frameworks, we draw from local expert knowledge in order to effectively address your enquiry. We may also connect you to a locally based organisation with the relevant expertise.

If you have chosen to contact a listed contact point within the ELSI Helpdesk Network, your enquiry will be processed in accordance with their respective operating procedures.

 

Who is it for?

The service is available to researchers and biobanks located in Member and Observer Countries of BBMRI-ERIC, as well as any research infrastructures working in the field of life sciences.

What happens after we respond?

Much of the information generated from the ELSI Helpdesk will also be beneficial to the wider scientific community.

As a publicly funded research infrastructure, it is important that any knowledge generated is shared. Therefore, responses issued through the ELSI Helpdesk may be used to feed into the ELSI Knowledge Base, an open access resource platform.

Any personal and confidential details will of course be removed.

 

What is it not?

Any information provided by the ELSI Helpdesk is not legal advice. As a research infrastructure, BBMRI-ERIC provides a public service by providing expertise and sharing knowledge regarding ELSI issues for the use and benefit of the biobanking community.

Information offered by the ELSI Helpdesk represents one view on the particular ELSI issue raised. It is not intended and should not be taken as the only view on the respective matter.

Professional legal advice should always be obtained before taking or refraining from any action as a result of information provided by the ELSI Helpdesk.

Additional Information

 The ELSI Helpdesk was conceptualised with funds from ADOPT BBMRI-ERIC and CORBEL, projects that received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreements No 676550 and No 654248, respectively


The website was co-funded within ADOPT BBMRI-ERIC, a project that has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 676550.
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