Topic: SC1-HCC-06-2020 – Coordination and Support to better data and secure cross-border digital infrastructures building on European capacities for genomics and personalised medicine
Type of Action: CSA
Duration: 36 months
Start date: 1 June 2020
Total request Grant by Consortium: €4,000,000
Total request Grant by BBMRI-ERIC: €157,190.15
Linked Third Parties/BBMRI-ERIC Framework Agreement: Latvian Biomedical Research and Study Centre (BMC – BBMRI.lv), Netherlands Cancer Institute (NKI – BBMRI.nl), and Biomedical Research Foundation of the Academy of Athens (BRFAA – BBMRI.gr)
Benefit/tasks for BBMRI-ERIC: BBMRI-ERIC and its linked third parties contribute to WP2 (ELSI).
Personalised medicine brings significant socio-economic benefits, including faster, more accurate diagnostics, the development of pharmacogenomics and the advancement of preventative medicine, resulting in better health and quality of life for patients as well as more efficient national health systems. The EU-funded B1MG project will provide the support and coordination structure for the European 1+ Million Genomes initiative based on the commitment of 20 EU states and Norway to work ‘towards access to at least 1 million sequenced genomes in the EU by 2022’. These countries will engage a range of stakeholders to support the creation of a pan-European genome-based health data infrastructure, encompassing data quality and exchange standards, access protocols and legal guidance.