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X-ORIGINAL-URL:https://www.bbmri-eric.eu
X-WR-CALDESC:Events for BBMRI-ERIC
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DTSTART;TZID=Europe/Paris:20221013T090000
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SUMMARY:European Biobank Week Roadshow - Paediatric Biobanking and Minor Engagement - Rome\, Italy
DESCRIPTION:Paediatric Biobanking and Minor Engagement – an interactive workshop\nThe second stop of our EBW22 Roadshow will be in Rome (Italy)\, 13-14 October. \nESBB and BBMRI-ERIC organise this #EBW22 Roadshow stop in partnership with the BBMRI ERIC Stakeholder Forum Patient Pillar\, BBMRI.it\, the Research Translational (IRCCS) Paediatric Bambino Gesù Hospital\, and the paediatric network IDEA. \nPaediatric (research) biobanking is a European priority asking for a scientific and Ethical-Legal-Societal-ELS shift within a Responsible Research & Innovation – RRI framework. Accordingly\, our critical starting point will be an overall view of European commitment to paediatric research and healthcare and an in-depth exchange on good practices and priorities of various actors to raise awareness\, facilitate assent and consenting processes\, and improve engagement. Promoting practical solutions\, we will address challenges of biobanking with children (earlier\, over time\, and following up)\, such as: \n\nHow empowering new generations makes better research and a better research experience?\nWhich tools to use to inform and increase the minor’s understanding?\nBy whom is the child’s capacity (to understand\, to assent) assessed?\nHow to engage minors and their parents (guardians) over time and recognize them as active research participants?\n\n\nBooking and further information\nSee the programme and register via the ESBB website today\, seats are limited! \nAs a practical recommendation: October is the high tourist season in Rome; book in advance – the sooner the better. \nYou will find the information notice specific to the data processing for the organization of the EBW Roadshow here. \nPlease also find our privacy statements here: ESBB\, BBMRI-ERIC. For more information on the Eventbrite Privacy Statement click here. \n\nYou will find the information notice specific to the data processing for the organization of the EBW Roadshow here.
URL:https://www.bbmri-eric.eu/events/european-biobank-week-roadshow-paediatric-biobanking-and-minor-engagement-rome-italy/
LOCATION:Paediatric Bambino Gesù Hospital\, Viale Ferdinando Baldelli 38\, Rome\, 00146\, Italy
CATEGORIES:BBMRI Events,Conference
ATTACH;FMTTYPE=image/jpeg:https://www.bbmri-eric.eu/wp-content/uploads/EBW_roadshow_subpage_reg_rom.jpg
ORGANIZER;CN="BBMRI-ERIC":MAILTO:contact@bbmri-eric.eu
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