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X-ORIGINAL-URL:https://www.bbmri-eric.eu
X-WR-CALDESC:Events for BBMRI-ERIC
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TZID:Europe/Paris
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DTSTART:20250330T010000
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DTSTART:20260329T010000
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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250224T100000
DTEND;TZID=Europe/Paris:20250224T110000
DTSTAMP:20260421T112003
CREATED:20250204T145843Z
LAST-MODIFIED:20250204T145843Z
UID:80264-1740391200-1740394800@www.bbmri-eric.eu
SUMMARY:Access and benefit-sharing of Genetic Resources: the Nagoya Protocol applied to biobanks
DESCRIPTION:Access and benefit-sharing of Genetic Resources: the Nagoya Protocol applied to biobanks\nThe fair and equitable sharing of benefits from genetic resources—known as Access and Benefit-Sharing (ABS)—is a key principle in global research and innovation. Governed by the Nagoya Protocol\, this international framework ensures compliance and fair use of genetic material\, with 141 countries on board since its enforcement in 2014. \nFor researchers\, biobanks\, and institutions\, navigating national ABS regulations can be complex\, impacting how biological materials are accessed and exchanged. Clear guidelines are essential to streamline compliance while enabling scientific progress. \nJoin us for an insightful webinar\, where Melania Muñoz (Leibniz Institute DSMZ) will break down the Nagoya Protocol and its impact on biobanks. Josephine Uldry (Swiss Biobanking Platform) will explore the Swiss regulatory landscape\, while Dr. Christian de Guttry (Swiss Institute of Bioinformatics) will share real-world insights of the Nagoya protocol application from Swiss and pan-European research projects. \nDon’t miss this opportunity to gain practical knowledge\, expert perspectives\, and actionable strategies to navigate ABS with confidence! \nJoin us on 24 February 2025 at 10:00 CEST. \nRegister online: https://cesnet.zoom.us/webinar/register/WN_3Tkkwf7US0OJlkibAwGEyg \nModerator: \nIlaria Colussi (BBMRI-ERIC) \nSpeakers:  \nMelania Muñoz (Leibniz Institute DSMZ) \nJosephine Uldry (Swiss Biobanking Platform) \nChristian de Guttry (Swiss Institute of Bioinformatics) \n  \nThis webinar is a offered by the ELSI Services & Research Department at BBMRI-ERIC.
URL:https://www.bbmri-eric.eu/events/access-and-benefit-sharing-of-genetic-resources-the-nagoya-protocol-applied-to-biobanks/
CATEGORIES:BBMRI Events,Webinar
ATTACH;FMTTYPE=image/png:https://www.bbmri-eric.eu/wp-content/uploads/ELSI_Dialogues_Nagoya_Feb24-e1738680826583.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250227T140000
DTEND;TZID=Europe/Paris:20250227T190000
DTSTAMP:20260421T112003
CREATED:20250204T152000Z
LAST-MODIFIED:20250204T152000Z
UID:80356-1740664800-1740682800@www.bbmri-eric.eu
SUMMARY:New era for health data: Secondary use of data in the EHDS and DGA and its implementation in Europe and Austria
DESCRIPTION:BBMRI.at in collaboration with the projects Smart-FOX and CD-Laboratory for Machine Learning Driven Precision Imaging is honored to invite to an exclusive forum\, “A New Era for Health Data: Secondary Use of Data in the EHDS and DGA and Its Implementation in Europe and Austria”.\n\nSecondary use of health data\nThe processing and sharing of health data is crucial to advance research of various diseases and health conditions as well as an inseparable part of personalized medicine and the concept of digital health. The European Data Strategy is taking shape with the entry into force of new legal acts\, such as the Data Act\, Data Gouvernance Act and soon also European Health Data Space Regulation. These legal acts bring changes to the national healthcare systems and data sharing infrastructures. \nAbout the event\nThis event convenes distinguished stakeholders from academia\, healthcare\, public administration\, and industry to address critical developments in the secondary use of health data\, as outlined by the European Data Strategy. Particular emphasis will be placed on the implications of forthcoming legislative frameworks\, including the European Health Data Space (EHDS)\, Data Act\, and Data Governance Act (DGA)\, and their integration into national systems. \nThe forum offers a unique platform to: \n\nEngage in high-level discussions on shaping the future of health data utilization.\nAnalyse the challenges and opportunities within Austria and across Europe.\nCollaborate with policymakers and legal experts to contribute to innovative\, data-driven healthcare solutions.\n\nEvent Details: \nDate: February 27\, 2025 \nTime: 14:00–19:00 \nVenue: Campus of the University of Vienna\, Spitalgasse 2\, 1090 Wien \nLanguage: English \nPROGRAMME and REGISTRATION HERE
URL:https://www.bbmri-eric.eu/events/new-era-for-health-data-secondary-use-of-data-in-the-ehds-and-dga-and-its-implementation-in-europe-and-austria/
LOCATION:Campus of the University of Vienna\, Spitalgasse 2\, Vienna\, Vienna\, 1090\, Austria
ATTACH;FMTTYPE=image/png:https://www.bbmri-eric.eu/wp-content/uploads/csm_20250227_NewEraForHealthData_33433f492a.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250411T110000
DTEND;TZID=Europe/Paris:20250411T120000
DTSTAMP:20260421T112003
CREATED:20250311T101141Z
LAST-MODIFIED:20250311T110744Z
UID:80874-1744369200-1744372800@www.bbmri-eric.eu
SUMMARY:Navigating the Future: Legal and IT Challenges\, Risks\, and Opportunities of AI in Biobanking
DESCRIPTION:Navigating the Future: Legal and IT Challenges\, Risks\, and Opportunities of AI in Biobanking –\nELSI Dialogues session\nThe integration of Artificial Intelligence (AI) into biobanking presents transformative opportunities for research\, diagnostics\, and personalised medicine. However\, this technological evolution also introduces complex legal\, regulatory\, and technical challenges. \nJoin us for an engaging and interactive webinar featuring a dynamic dialogue between two leading experts: Prof. Nikolaus Forgó (University of Vienna\, Austria)\, Professor for IT- and IP Law\, who is also an expert member of the Austrian Data Protection Council and Member of the AI Advisory Board and Prof. Marco Montali (The Free University of Bozen-Bolzano\, Italy)\, Professor in Computer Engineering and awarded by the Italian Association of Artificial Intelligence to the best under 35 Italian researchers in artificial intelligence. \nThis session will address critical regulatory frameworks such as the GDPR and the AI Act\, examining how data protection laws influence the deployment of AI technologies in biobanking\, what the legal responsibilities arising from AI-driven decisions are and how the AI Act is publicly perceived. \nThe webinar will also showcase real-world applications of AI in biobank data analysis and management\, and discuss methods to mitigate bias in AI algorithms and strategies to ensure transparency and explainability in AI-driven insights. \nFurthermore\, our speakers will explore the inherent tension between political\, legal\, and technical considerations when implementing AI at scale\, sharing concrete examples and best practices. \nThis event will foster an open and thought-provoking conversation\, encouraging active participation and deeper insights. \n  \nDon’t miss this opportunity to be part of an interactive and insightful dialogue! \nJoin us on 11 April 2025 at 11:00 CEST.  \nRegister here. \n  \nModerator: \nDr. Ilaria Colussi (BBMRI-ERIC) \nSpeakers:  \nProf. Nikolaus Forgó (University of Vienna\, Austria) \nProf. Marco Montali (Free University of Bozen-Bolzano\, Italy) \n  \nThis webinar is a offered by ELSI Services & Research Department at BBMRI-ERIC.
URL:https://www.bbmri-eric.eu/events/navigating-the-future-legal-and-it-challenges-risks-and-opportunities-of-ai-in-biobanking/
CATEGORIES:BBMRI Events,Webinar
ATTACH;FMTTYPE=image/png:https://www.bbmri-eric.eu/wp-content/uploads/ELSI_Dialogues_April2025-e1741687873763.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250429T100000
DTEND;TZID=Europe/Paris:20250429T110000
DTSTAMP:20260421T112003
CREATED:20250409T153655Z
LAST-MODIFIED:20250410T130123Z
UID:81409-1745920800-1745924400@www.bbmri-eric.eu
SUMMARY:BBMRI.QM Newsroom: Proficiency Testing in Liquid Biobanking – A versatile tool for the identification of variations in process and sample quality
DESCRIPTION:BBMRI.QM Newsroom: Proficiency Testing in Liquid Biobanking – A versatile tool for the identification of variations in process and sample quality\nIn the first BBMRI.QM Newsroom of the year\, the focus will be on the „Continuous Improvement“ pillar of the BBMRI.QM services\, which underpins BBMRI-ERIC’s efforts to enhance quality assurance (QA) and quality control (QC) measures in biobanks. This pillar aims to ensure that biobanks provide high-quality materials and data for health research. \nOn 29 April\, Sven Heiling from the Integrated Biobank Jena will present on Proficiency Testing in Liquid Biobanking – A versatile tool for the identification of variations in process and sample quality. Proficiency testing is crucial for identifying variations in process and sample quality\, especially in the pre-analytical phase. This session will highlight how proficiency testing can help biobanks maintain consistency and reliability\, contributing to the continuous improvement of biobanking practices. \nSave the date: 29 April and join us to explore this essential topic in biobanking quality management. \n  \nGuest Speaker: Sven Heiling (Integrated Biobank Jena) \nHost: Stella Antoniou (Quality Manager\, BBMRI-ERIC) \n  \nWhen: 29 April\, 10-11 CEST via Zoom \n  \nRegistration: https://cesnet.zoom.us/meeting/register/FvsEHVOvT2eQfoA6W5lINQ \n  \nAgenda: \n10:00-10:05 Introduction (Stella Antoniou) \n10:05-10:45 Presentation (Sven Heiling) \n10:45-10:55 Q&A (all) \n10:55-11:00 Closing remarks
URL:https://www.bbmri-eric.eu/events/bbmri-qm-newsroom-proficiency-testing-in-liquid-biobanking-a-versatile-tool-for-the-identification-of-variations-in-process-and-sample-quality/
CATEGORIES:BBMRI Events
ATTACH;FMTTYPE=image/png:https://www.bbmri-eric.eu/wp-content/uploads/QMNewsroom_April_2025-2-e1744290071177.png
ORGANIZER;CN="BBMRI.QM Newsroom":MAILTO:nadja.palko@bbmri-eric.eu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250513T080000
DTEND;TZID=Europe/Paris:20250516T170000
DTSTAMP:20260421T112003
CREATED:20240705T074258Z
LAST-MODIFIED:20240705T074346Z
UID:77260-1747123200-1747414800@www.bbmri-eric.eu
SUMMARY:Europe Biobank Week 2025
DESCRIPTION:SAVE THE DATE: The most important event of the year in the global biobanking community!\nJoin us at Bologna Congressi\, Italy from 13-16 May 2025 at #EBW25 for the biggest biobanking networking opportunity\, to meet industry representatives at the exhibition\, discuss the newest findings and hot topics with experts from healthcare\, academia\, and industry\, and attend high-quality scientific programmes. \nThe congress will highlight state-of-the-art biobanking innovations and research. This action-packed congress will feature keynote presentations\, panels and workshops organised by ESBB and BBMRI-ERIC. \nDetails on sponsorship and registration will follow shortly on the EBW website.
URL:https://www.bbmri-eric.eu/events/europe-biobank-week-2025/
LOCATION:Bologna Congressi\, Piazza della Costituzione 4\, Bologna\, 40128\, Italy
CATEGORIES:BBMRI Events,Conference
ATTACH;FMTTYPE=image/png:https://www.bbmri-eric.eu/wp-content/uploads/EBW_StheD_2025_smaller.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250603T150000
DTEND;TZID=Europe/Paris:20250603T163000
DTSTAMP:20260421T112003
CREATED:20250424T100532Z
LAST-MODIFIED:20250424T100532Z
UID:81658-1748962800-1748968200@www.bbmri-eric.eu
SUMMARY:Empowering Voices: Enhancing Patient Engagement in Oncology Research – Experiences\, Challenges\, and Pathways to Inclusion
DESCRIPTION:Empowering Voices: Enhancing Patient Engagement in Oncology Research – Experiences\, Challenges\, and Pathways to Inclusion.\nThis webinar aims to spark a meaningful discussion on strategies to strengthen patient engagement throughout the various stages of oncological research. Experts from the life sciences\, together with patient representatives\, will explore current barriers\, identify key challenges\, and collaboratively discuss practical solutions. A central focus will be on elevating patients’ voices and experiences in research participation\, highlighting their essential role in shaping more inclusive and impactful cancer research. \nThis webinar is part of the canSERV project\, which aims to deliver cutting-edge cancer research services to scientists across EU member states\, associated countries\, and beyond. The project unites a multidisciplinary consortium of 18 European partners specializing in oncology\, project management\, and sustainability. \nPanellists: \nMargareta Haag (Swedish Network against Cancer) \nStefanie Houwaart (BRCA Network) \nZisis Kozlakidis (IARC/WHO) \nModerator: \nMelanie Goisauf (BBMRI-ERIC) \n  \nRegistration: https://cesnet.zoom.us/webinar/register/WN_1JSt2JcMSZy92ceURHzWrA
URL:https://www.bbmri-eric.eu/events/empowering-voices-enhancing-patient-engagement-in-oncology-research-experiences-challenges-and-pathways-to-inclusion/
CATEGORIES:BBMRI Events
ATTACH;FMTTYPE=image/png:https://www.bbmri-eric.eu/wp-content/uploads/ELSI-Dialogues_2024-2025_small.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251006T090000
DTEND;TZID=Europe/Paris:20251008T133000
DTSTAMP:20260421T112003
CREATED:20250710T095022Z
LAST-MODIFIED:20250710T095022Z
UID:82715-1759741200-1759930200@www.bbmri-eric.eu
SUMMARY:BioTechX Europe 2025
DESCRIPTION:SAVE THE DATE\nBBMRI-ERIC will once again be at the BioTechX Europe Congress. BioTechX Europe is Europe’s largest congress covering diagnostics\, precision medicine and digital transformation in pharmaceutical development and healthcare. \nThe 3-day event will return to Basel\, the pharma hub of Europe\, this time with over 3000 leaders in the field\, 400 speakers\, 150 exhibitors and 50 start-ups all under one roof. The BioTechX Europe Congress features speakers from the top 50 pharmaceutical companies\, biotech\, healthcare systems and academic groups creating endless networking opportunities. \n📆 Date:  6-8 October 2025 \n📍Venue:  Messe Basel\, Switzerland \n🔗 Register
URL:https://www.bbmri-eric.eu/events/biotechx-europe-2025/
LOCATION:Messe Basel\, Messeplatz 10\, Basel\, 4005\, Switzerland
CATEGORIES:BBMRI Events
ATTACH;FMTTYPE=image/jpeg:https://www.bbmri-eric.eu/wp-content/uploads/1200x630-banner-2025-e1752140493996.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251022T130000
DTEND;TZID=Europe/Paris:20251023T183000
DTSTAMP:20260421T112003
CREATED:20240705T073800Z
LAST-MODIFIED:20251016T114605Z
UID:77256-1761138000-1761244200@www.bbmri-eric.eu
SUMMARY:BBMRI-ERIC ACADEMY  SYMPOSIUM: Ethical\, Legal\, and Societal Aspects in View of Recent EU Legislation
DESCRIPTION:SAVE THE DATE\nThis two-day event provides a rich\, interdisciplinary learning experience guided by experts in the field of ethics\, law\, social science\, philosophy or arts.\n\n\n  \nDate: 22-23. October 2025\nWhere: Bilbao\, Spain\n\n  \nRegistration is closed.\n  \n\n🔗 Programme \n\nSessions\n\nSESSION 1: The European Health Data Space (EHDS). General Overview \nSESSION 2: Bringing the Community Together: Physicians\, Researchers & Infrastructures \nSESSION 3: Citizen Participation\, Transparency & Science \nSESSION 4: Data Subjects’ Rights \nSESSION 5: The Role of Biobanks in the EHDS Governances \nSESSION 6: Presentations by Early-Career Researchers \nSESSION 7: ELSI Aspects of Artificial Intelligence in Biobanking \n\nYOUNG RESEARCHERS AWARD\nApplication \nWe encourage early career researchers in the ELSI field to submit either a poster or an abstract in order to apply for the Young Researchers Award (à 700€). If your research is in any way connected to recent developments in EU health legislation or the wider ELSI field and you want to present to the ELSI community\, please submit either your poster or an abstract until 15 August 2025. Decisions will be made shortly after the deadline.  \nApplication has now closed! \n  \nSponsorship Opportunity for the Young Researchers Award: \nSupport the ELSI Symposium and the work of early career researchers by contributing to our Young Researchers Award.  \nSeven submissions from early career researchers (PhD candidates until 5 years after PhD)\, who will be selected by the scientific committee of the symposium\, will be able to present their research from the ELSI field to the ELSI community.  \nYour support is highly appreciated – we will include your logo in all future communications and placement during the symposium. \n  \nOrganisers\nBBMRI-ERIC \nUniversity of the Basque Country (UPV/EHU) \nUniversity of Milano-Bicocca (UNIMIB) \nPlatform ISCIII Biomodels and Biobanks (BBMRI.es) \nContact\nViridiana Beltran Venegas (BBMRI-ERIC) viridiana.beltran@bbmri-eric.eu  \nFrancesca Tassinari (UPV/EHU) francesca.tassinari@ehu.eus \nVenue\nBizkaia Aretoa – UPV/EHU\nAbandoibarra Etorb.\, 3\nAbando\, 48009 Bilbao\, Biscay (Spain) \n  \nFurther details will be added to this event page as they become available.
URL:https://www.bbmri-eric.eu/events/bbmri-eric-academy-symposium-ethical-legal-and-societal-aspects-in-the-age-of-ehds/
CATEGORIES:BBMRI Events
ATTACH;FMTTYPE=image/png:https://www.bbmri-eric.eu/wp-content/uploads/BBMRI-ERIC_academy_ELSI_Bilbao_2025-e1754901017963.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251028T140000
DTEND;TZID=Europe/Paris:20251028T153000
DTSTAMP:20260421T112003
CREATED:20251003T085920Z
LAST-MODIFIED:20251017T072133Z
UID:83810-1761660000-1761665400@www.bbmri-eric.eu
SUMMARY:Trustworthy by Design: Ethics\, Practice\, and Impact of AI in Cancer Research and Care
DESCRIPTION:Trustworthy by Design: Ethics\, Practice\, and Impact of AI in Cancer Research and Care \nDescription: \nTrustworthy AI has become a central concept in the ethical development and application of artificial intelligence in medicine. In cancer research\, particularly in imaging\, the potential of AI to improve diagnostics\, treatment planning\, and patient outcomes is immense. But what does it mean for AI to be truly trustworthy in practice? \nThis webinar brings together experts working at the intersection of AI development and cancer care to discuss practical dimensions of trustworthy AI. Topics will include current applications\, perceived benefits\, and challenges in clinical environments\, as well as the role of human involvement\, knowledge-sharing\, and trust-building in real-world settings. The discussion will explore how to ensure that AI tools are not only reliable but also accepted and used with confidence. \nThe session will highlight concrete aspects to make AI in cancer research more inclusive\, responsible\, and impactful—supporting both patients and professionals in high-stakes medical decisions. Join us for an open and practice-oriented dialogue on how to foster trust in AI for cancer research and care. \nRegistration via Zoom: https://cesnet.zoom.us/webinar/register/WN_JAV88wUGTVKrdtk49sy0fw \n  \nInvited Experts: \nDr. Maciej Bobowicz (Medical University of Gdańsk) \nDr Maciej Bobowicz is an Assistant Professor at the 2nd Department of Radiology\, Medical University of Gdańsk\, Poland\, and a surgical oncologist specialising in breast cancer diagnostics and treatment. His research focuses on the ethical and clinically responsible use of artificial intelligence in oncology\, radiomics\, and precision medicine. \nHe leads or contributes to several EU-funded projects\, including EuCanImage\, RadioVal\, MAYA\, Cinderella\, TRACE and CAREWAY. He is also part of the AI4HI network\, which supports the EUCAIM initiative under Europe’s Beating Cancer Plan. Author of over 80 scientific papers\, Dr Bobowicz is committed to advancing patient-centred\, trustworthy\, and equitable AI applications in cancer imaging and care. \nProf. Karim Lekadir (University of Barcelona) \nKarim Lekadir is an ICREA Research Professor in the Department of Mathematics and Computer Science at the University of Barcelona. He obtained his PhD from Imperial College London and was a postdoctoral researcher at Stanford University. He investigates new data science techniques for trustworthy and ethical artificial intelligence in medicine. He has been PI in 15 EU-funded projects\, coordinated 6 Horizon projects\, and was awarded an ERC Consolidator grant to investigate new AI techniques tailored to resource-limited settings. \nModerator: Melanie Goisauf (BBMRI-ERIC) \nDr. Melanie Goisauf is an accomplished social scientist with a PhD in Sociology from the University of Vienna\, where she graduated with honours. She also studied at the Royal Holloway University of London and completed the postgraduate program “Sociology of Social Practices” at the Institute for Advanced Studies (IHS) Vienna.With almost two decades of experience as researcher and lecturer at\, amongst others\, the Department of Science and Technology Studies and the Institute of Sociology of the University of Vienna\, as well as at the University of Malta\, Dr. Goisauf has established herself as a leading expert in her field. As senior scientist at BBMRI-ERIC she is involved in several research projects and serves on ethical advisory boards. Dr. Goisauf also leads the Ethics of AI Lab\, which focuses on the ethical and social implications of artificial intelligence\, and is in charge of the scientific coordination of the Horizon Europe project PERIFORMANCE. \nRegistration via Zoom: https://cesnet.zoom.us/webinar/register/WN_JAV88wUGTVKrdtk49sy0fw
URL:https://www.bbmri-eric.eu/events/trustworthy-by-design-ethics-practice-and-impact-of-ai-in-cancer-research-and-care/
CATEGORIES:BBMRI Events,Webinar
ATTACH;FMTTYPE=image/png:https://www.bbmri-eric.eu/wp-content/uploads/ELSI-Dialogues_Oct2025-e1760615670848.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251202T100000
DTEND;TZID=Europe/Paris:20251202T113000
DTSTAMP:20260421T112003
CREATED:20251118T104102Z
LAST-MODIFIED:20251118T104102Z
UID:84544-1764669600-1764675000@www.bbmri-eric.eu
SUMMARY:2nd BBMRI-ERIC QM Newsroom 2025
DESCRIPTION:From sample to science: ensuring quality in human microbiome research\nRegister here \n2nd December 2025\, 10:00-11:30 CET \nSummary: \nThis training provides an overview of the human microbiome and its growing relevance in biomedical and translational research. Participants will learn about its impact on health and disease as well as the scientific and technical challenges currently faced in microbiome research and how standardisation can help here. In addition\, the new Self-Assessment Survey based on CEN/TS 17626 “Molecular in vitro diagnostic examinations – Specifications for pre-examination processes for human specimen – Isolated microbiome DNA” will be introduced. Participants will receive guidance in requesting\, navigating\, completing and submitting the Self-Assessment Survey. \nSpeakers: \nPatrizia Brigidi (University of Bologna) \nAlice Bernardi (University of Bologna) \nHost: Maike Tauchert (BBMRI-ERIC) \nAgenda: \n\n\nTraining: From sample to science: ensuring quality in human microbiome research\n\n\nLaunch of new Self-Assessment Survey (SAS) for the CEN/TS 17626\n\n\nQ&A\n\n\nAfter watching the webinar\, participants will have acquired the following knowledge: \n\n\nUnderstanding what the human microbiome is and why it is important to study it\n\n\nStatus quo and existing challenges in this specific field of research\n\n\nNeed for standardisation of biobanking activities for biological material for microbiome research\n\n\nAwareness of CEN/TS 17626 “Molecular in vitro diagnostic examinations – Specifications for pre-examination processes for human specimen – Isolated microbiome DNA”\n\nRequesting\, navigating\, completing and submitting the new Self-Assessment Survey based on CEN/TS 17626 requirements\n\nRegister here
URL:https://www.bbmri-eric.eu/events/2nd-bbmri-eric-qm-newsroom-2025/
CATEGORIES:BBMRI Events,Webinar
ATTACH;FMTTYPE=image/png:https://www.bbmri-eric.eu/wp-content/uploads/2nd-Newsroom-2025-e1763462283431.png
ORGANIZER;CN="BBMRI.QM Newsroom":MAILTO:nadja.palko@bbmri-eric.eu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20260128T100000
DTEND;TZID=Europe/Paris:20260128T113000
DTSTAMP:20260421T112003
CREATED:20260122T092845Z
LAST-MODIFIED:20260126T104530Z
UID:85713-1769594400-1769599800@www.bbmri-eric.eu
SUMMARY:Webinar on Green Biobanking survey
DESCRIPTION:As part of the EvolveBBMRI project\, a survey on Green Biobanking Environmental Challenges and Best Practices was conducted to engage National Nodes and their associated biobanks in a comprehensive mapping exercise. The survey aimed to identify and assess key gaps and challenges in the implementation and long-term maintenance of environmentally sustainable biobanking practices. \nThis important initiative laid the foundation for Strategic Objective 3 (SO3) of our Work Programme 2025–2027\, which focuses on Fostering green biobanking and Research Infrastructure operations. \nOn 28 January\, BBMRI-ERIC\, together with the National Nodes of Austria (Biobank Graz) and the Netherlands (Amsterdam UMC Biobank)\, will host a webinar to discuss how further analysis and strategic use of the survey results can enhance our collective understanding of\, and progress toward\, greener biobanking practices. \nWhen: Wednesday\, 28th of January 10:00 – 11:30 CET \nWhere: online\, ZOOM \nLink to registration: https://cesnet.zoom.us/j/92954306736?pwd=e8hfbof8pus4OlaQals4wMAnfIk4mp.1 \nSpeakers: \n\nMonika Valjan\, BBMRI.at\nJörg Hamann\, BBMRI.nl\n\nHost: Saba Abdulghani\, BBMRI-ERIC \nAgenda: \n\nWelcome and introduction – Saba Abdulghani\, BBMRI-ERIC\n\nEvaluation/results – Monika Valjan\, BBMRI.at\n\n\nEvaluation/results –  Jörg Hamann\, BBMRI.nl\n\n\nGeneral findings\n\n\nDiscussion
URL:https://www.bbmri-eric.eu/events/webinar-on-green-biobanking-survey/
LOCATION:Online
CATEGORIES:BBMRI Events,Webinar
ATTACH;FMTTYPE=image/png:https://www.bbmri-eric.eu/wp-content/uploads/webinar_survey_green_biobanking-e1769424287382.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20260204T120000
DTEND;TZID=Europe/Paris:20260204T130000
DTSTAMP:20260421T112003
CREATED:20251215T094829Z
LAST-MODIFIED:20251216T091223Z
UID:85081-1770206400-1770210000@www.bbmri-eric.eu
SUMMARY:Webinar: Strengthening Biobanks through Patient and Public involvement
DESCRIPTION:Strengthening Biobanks through Patient and Public involvement\nWebinar organised by the BBMRI-ERIC Stakeholder Forum \nSummary: \nConstant dialogue with patients\, caregivers\, and the public is a key guiding principle in biobanking and research. Yet\, public and patient involvement\, often referred to also as research participant involvement\, has not become the usual practice in many biobanks. Often\, participants are informed in a one-way manner rather than actively involved. Public and Patient Involvement and Engagement (PPIE) in research is defined as “research being carried out ‘with’ or ‘by’ members of the public rather than ‘to\,’ ‘about’ or ‘for’ them“. \nThis webinar will focus on highlighting the importance and benefits of involving patients and public representatives as co-partners in biobanking and research\, emphasising their role in shaping the biobanking ecosystem. Biobank experts and patient representatives will share best practices on engagement and involvement\, while also addressing barriers\, challenges and practical solutions to strengthen participation and co-creation in biobanking. \nThe central focus of the webinar is to increase awareness of the benefits of patient and public involvement and to encourage the biobanking community to adopt and expand their public and patient involvement and engagement activities. \nWhen: Wednesday\, 4th of February 12:00 – 13:00 CET \nWhere: online\, ZOOM \nLink to registration: https://cesnet.zoom.us/webinar/register/WN_ICIiT5roQs2Wdf-ApdWaYA#/registration \nSpeakers: \n\nEric Vermeulen\, Chair of BBMRI-ERIC Stakeholder Forum Patients’ and Citizens’ Pillar and Patient Participation Advisor at PostCovid NL\nRonny Baber\, Head of the Leipzig Medical Biobank\nSara Rebbling\, Member of Biobank Sweden’s citizen engagement team and Department manager at Biobanken norr\, Region Västerbotten\nAlbert Counet\, President of Ligue Huntington Francophone Belge and member of the BBMRI-ERIC Stakeholder Forum Patients’ and Citizens’ Pillar\n\nHost: Manuela Pausan\, BBMRI-ERIC \nAgenda: \n\nWelcome and introducing the speakers – 5 min\nShort presentations from the 4 speakers – 40 min\nDiscussion and Q&A – 15 min
URL:https://www.bbmri-eric.eu/events/webinar-strengthening-biobanks-through-patient-and-public-involvement/
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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20260324T100000
DTEND;TZID=Europe/Paris:20260324T113000
DTSTAMP:20260421T112003
CREATED:20260303T122647Z
LAST-MODIFIED:20260316T113035Z
UID:86851-1774346400-1774351800@www.bbmri-eric.eu
SUMMARY:Webinar: The role of biobanks in realising the One Health approach
DESCRIPTION:The role of biobanks in realising the One Health approach \nTime: 24.03.26\, 10:00-11:30 via Zoom \nRegister here. \nOne Health aims at sustainably balancing and optimising the health of humans\, animals\, plants and the environment. This integrated perspective is especially important for tackling emerging zoonotic diseases\, antimicrobial resistance\, food safety risks\, environmental pollution and global health security. However\, One Health operates within regulatory frameworks that differ across sectors\, requiring consensus between fragmented governance structures. Operationalising a One Health approach calls for a convergence of legal provisions and regulatory compliance to become effective. \nBiobanking across human and non-human domains could play a key role in enabling the One Health approach by supporting the collection\, storage and sharing of samples and data for surveillance\, research\, and policymaking. At the same time\, it raises ethical\, legal\, and operational challenges that need to be addressed. \nThis webinar will open with a short introduction by Josephine Uldry (Swiss Biobanking)\, outlining the means for the biobanking community to support a One Health approach in research. Prof. Jakob Zinsstag (Swiss Tropical and Public Health Institute)\, a pioneer of the One Health concept\, will share insights from his extensive field experience in implementing this approach in diverse contexts and communities\, illustrating how One Health approaches can improve epidemiology and public health policy in practice. Dr Adam Strobeyko (Swiss Biobanking and Global Health Centre\, Geneva Graduate Institute) will discuss the legal dimensions of pandemic prevention\, preparedness\, and response the efforts to integrate One Health into international frameworks and practical implications for biobanks. \nSpeakers: \nJoesephine Uldry \nProf. Jakob Zinsstag \nDr Adam Strobeyko \nModerator: \nMónica Cano Abadía \nRegister here.
URL:https://www.bbmri-eric.eu/events/webinar-the-role-of-biobanks-in-realising-the-one-health-approach/
CATEGORIES:Webinar
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260603
DTEND;VALUE=DATE:20260605
DTSTAMP:20260421T112003
CREATED:20251107T090939Z
LAST-MODIFIED:20251107T091938Z
UID:84382-1780444800-1780617599@www.bbmri-eric.eu
SUMMARY:European Conference on Rare Diseases and Orphan Products (ECRD) 2026
DESCRIPTION:Save the date! The next ECRD will be held on 3 & 4 June 2026 in Prague and will be titled “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”.  \nThe European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led policy-shaping event on rare diseases in Europe. \nBy bringing together people living with rare diseases and patient advocates alongside policymakers\, healthcare industry representatives\, clinicians\, regulators\, and Member State officials\, EURORDIS leverages the strength of this unique network to advance goal-driven policies that improve the lives of people living with a rare disease and their families. \nECRD 2026 is expected to unite over 500 participants in Prague\, with an additional 300+ joining online. Thanks to its hybrid format\, the conference will provide an unparalleled platform for connection and collaboration\, enabling participants across the rare disease community to exchange knowledge\, share experiences\, and build partnerships. \nPatient groups\, academics\, healthcare professionals and other interested parties who have conducted research or studies on rare diseases or public health projects are encouraged to submit a poster abstract for the ECRD 2026. \nThe submission form and detailed information on the guidelines and criteria can be found here.
URL:https://www.bbmri-eric.eu/events/european-conference-on-rare-diseases-and-orphan-products-ecrd-2026/
LOCATION:Prague & online
CATEGORIES:Conference
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