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X-ORIGINAL-URL:https://www.bbmri-eric.eu
X-WR-CALDESC:Events for BBMRI-ERIC
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DTSTART:20250330T010000
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DTSTART:20251026T010000
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DTSTART:20260329T010000
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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251202T100000
DTEND;TZID=Europe/Paris:20251202T113000
DTSTAMP:20260513T042010
CREATED:20251118T104102Z
LAST-MODIFIED:20251118T104102Z
UID:84544-1764669600-1764675000@www.bbmri-eric.eu
SUMMARY:2nd BBMRI-ERIC QM Newsroom 2025
DESCRIPTION:From sample to science: ensuring quality in human microbiome research\nRegister here \n2nd December 2025\, 10:00-11:30 CET \nSummary: \nThis training provides an overview of the human microbiome and its growing relevance in biomedical and translational research. Participants will learn about its impact on health and disease as well as the scientific and technical challenges currently faced in microbiome research and how standardisation can help here. In addition\, the new Self-Assessment Survey based on CEN/TS 17626 “Molecular in vitro diagnostic examinations – Specifications for pre-examination processes for human specimen – Isolated microbiome DNA” will be introduced. Participants will receive guidance in requesting\, navigating\, completing and submitting the Self-Assessment Survey. \nSpeakers: \nPatrizia Brigidi (University of Bologna) \nAlice Bernardi (University of Bologna) \nHost: Maike Tauchert (BBMRI-ERIC) \nAgenda: \n\n\nTraining: From sample to science: ensuring quality in human microbiome research\n\n\nLaunch of new Self-Assessment Survey (SAS) for the CEN/TS 17626\n\n\nQ&A\n\n\nAfter watching the webinar\, participants will have acquired the following knowledge: \n\n\nUnderstanding what the human microbiome is and why it is important to study it\n\n\nStatus quo and existing challenges in this specific field of research\n\n\nNeed for standardisation of biobanking activities for biological material for microbiome research\n\n\nAwareness of CEN/TS 17626 “Molecular in vitro diagnostic examinations – Specifications for pre-examination processes for human specimen – Isolated microbiome DNA”\n\nRequesting\, navigating\, completing and submitting the new Self-Assessment Survey based on CEN/TS 17626 requirements\n\nRegister here
URL:https://www.bbmri-eric.eu/events/2nd-bbmri-eric-qm-newsroom-2025/
CATEGORIES:BBMRI Events,Webinar
ATTACH;FMTTYPE=image/png:https://www.bbmri-eric.eu/wp-content/uploads/2nd-Newsroom-2025-e1763462283431.png
ORGANIZER;CN="BBMRI.QM Newsroom":MAILTO:nadja.palko@bbmri-eric.eu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20260128T100000
DTEND;TZID=Europe/Paris:20260128T113000
DTSTAMP:20260513T042010
CREATED:20260122T092845Z
LAST-MODIFIED:20260126T104530Z
UID:85713-1769594400-1769599800@www.bbmri-eric.eu
SUMMARY:Webinar on Green Biobanking survey
DESCRIPTION:As part of the EvolveBBMRI project\, a survey on Green Biobanking Environmental Challenges and Best Practices was conducted to engage National Nodes and their associated biobanks in a comprehensive mapping exercise. The survey aimed to identify and assess key gaps and challenges in the implementation and long-term maintenance of environmentally sustainable biobanking practices. \nThis important initiative laid the foundation for Strategic Objective 3 (SO3) of our Work Programme 2025–2027\, which focuses on Fostering green biobanking and Research Infrastructure operations. \nOn 28 January\, BBMRI-ERIC\, together with the National Nodes of Austria (Biobank Graz) and the Netherlands (Amsterdam UMC Biobank)\, will host a webinar to discuss how further analysis and strategic use of the survey results can enhance our collective understanding of\, and progress toward\, greener biobanking practices. \nWhen: Wednesday\, 28th of January 10:00 – 11:30 CET \nWhere: online\, ZOOM \nLink to registration: https://cesnet.zoom.us/j/92954306736?pwd=e8hfbof8pus4OlaQals4wMAnfIk4mp.1 \nSpeakers: \n\nMonika Valjan\, BBMRI.at\nJörg Hamann\, BBMRI.nl\n\nHost: Saba Abdulghani\, BBMRI-ERIC \nAgenda: \n\nWelcome and introduction – Saba Abdulghani\, BBMRI-ERIC\n\nEvaluation/results – Monika Valjan\, BBMRI.at\n\n\nEvaluation/results –  Jörg Hamann\, BBMRI.nl\n\n\nGeneral findings\n\n\nDiscussion
URL:https://www.bbmri-eric.eu/events/webinar-on-green-biobanking-survey/
LOCATION:Online
CATEGORIES:BBMRI Events,Webinar
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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20260204T120000
DTEND;TZID=Europe/Paris:20260204T130000
DTSTAMP:20260513T042010
CREATED:20251215T094829Z
LAST-MODIFIED:20251216T091223Z
UID:85081-1770206400-1770210000@www.bbmri-eric.eu
SUMMARY:Webinar: Strengthening Biobanks through Patient and Public involvement
DESCRIPTION:Strengthening Biobanks through Patient and Public involvement\nWebinar organised by the BBMRI-ERIC Stakeholder Forum \nSummary: \nConstant dialogue with patients\, caregivers\, and the public is a key guiding principle in biobanking and research. Yet\, public and patient involvement\, often referred to also as research participant involvement\, has not become the usual practice in many biobanks. Often\, participants are informed in a one-way manner rather than actively involved. Public and Patient Involvement and Engagement (PPIE) in research is defined as “research being carried out ‘with’ or ‘by’ members of the public rather than ‘to\,’ ‘about’ or ‘for’ them“. \nThis webinar will focus on highlighting the importance and benefits of involving patients and public representatives as co-partners in biobanking and research\, emphasising their role in shaping the biobanking ecosystem. Biobank experts and patient representatives will share best practices on engagement and involvement\, while also addressing barriers\, challenges and practical solutions to strengthen participation and co-creation in biobanking. \nThe central focus of the webinar is to increase awareness of the benefits of patient and public involvement and to encourage the biobanking community to adopt and expand their public and patient involvement and engagement activities. \nWhen: Wednesday\, 4th of February 12:00 – 13:00 CET \nWhere: online\, ZOOM \nLink to registration: https://cesnet.zoom.us/webinar/register/WN_ICIiT5roQs2Wdf-ApdWaYA#/registration \nSpeakers: \n\nEric Vermeulen\, Chair of BBMRI-ERIC Stakeholder Forum Patients’ and Citizens’ Pillar and Patient Participation Advisor at PostCovid NL\nRonny Baber\, Head of the Leipzig Medical Biobank\nSara Rebbling\, Member of Biobank Sweden’s citizen engagement team and Department manager at Biobanken norr\, Region Västerbotten\nAlbert Counet\, President of Ligue Huntington Francophone Belge and member of the BBMRI-ERIC Stakeholder Forum Patients’ and Citizens’ Pillar\n\nHost: Manuela Pausan\, BBMRI-ERIC \nAgenda: \n\nWelcome and introducing the speakers – 5 min\nShort presentations from the 4 speakers – 40 min\nDiscussion and Q&A – 15 min
URL:https://www.bbmri-eric.eu/events/webinar-strengthening-biobanks-through-patient-and-public-involvement/
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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20260324T100000
DTEND;TZID=Europe/Paris:20260324T113000
DTSTAMP:20260513T042010
CREATED:20260303T122647Z
LAST-MODIFIED:20260316T113035Z
UID:86851-1774346400-1774351800@www.bbmri-eric.eu
SUMMARY:Webinar: The role of biobanks in realising the One Health approach
DESCRIPTION:The role of biobanks in realising the One Health approach \nTime: 24.03.26\, 10:00-11:30 via Zoom \nRegister here. \nOne Health aims at sustainably balancing and optimising the health of humans\, animals\, plants and the environment. This integrated perspective is especially important for tackling emerging zoonotic diseases\, antimicrobial resistance\, food safety risks\, environmental pollution and global health security. However\, One Health operates within regulatory frameworks that differ across sectors\, requiring consensus between fragmented governance structures. Operationalising a One Health approach calls for a convergence of legal provisions and regulatory compliance to become effective. \nBiobanking across human and non-human domains could play a key role in enabling the One Health approach by supporting the collection\, storage and sharing of samples and data for surveillance\, research\, and policymaking. At the same time\, it raises ethical\, legal\, and operational challenges that need to be addressed. \nThis webinar will open with a short introduction by Josephine Uldry (Swiss Biobanking)\, outlining the means for the biobanking community to support a One Health approach in research. Prof. Jakob Zinsstag (Swiss Tropical and Public Health Institute)\, a pioneer of the One Health concept\, will share insights from his extensive field experience in implementing this approach in diverse contexts and communities\, illustrating how One Health approaches can improve epidemiology and public health policy in practice. Dr Adam Strobeyko (Swiss Biobanking and Global Health Centre\, Geneva Graduate Institute) will discuss the legal dimensions of pandemic prevention\, preparedness\, and response the efforts to integrate One Health into international frameworks and practical implications for biobanks. \nSpeakers: \nJoesephine Uldry \nProf. Jakob Zinsstag \nDr Adam Strobeyko \nModerator: \nMónica Cano Abadía \nRegister here.
URL:https://www.bbmri-eric.eu/events/webinar-the-role-of-biobanks-in-realising-the-one-health-approach/
CATEGORIES:Webinar
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260603
DTEND;VALUE=DATE:20260605
DTSTAMP:20260513T042010
CREATED:20251107T090939Z
LAST-MODIFIED:20251107T091938Z
UID:84382-1780444800-1780617599@www.bbmri-eric.eu
SUMMARY:European Conference on Rare Diseases and Orphan Products (ECRD) 2026
DESCRIPTION:Save the date! The next ECRD will be held on 3 & 4 June 2026 in Prague and will be titled “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”.  \nThe European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led policy-shaping event on rare diseases in Europe. \nBy bringing together people living with rare diseases and patient advocates alongside policymakers\, healthcare industry representatives\, clinicians\, regulators\, and Member State officials\, EURORDIS leverages the strength of this unique network to advance goal-driven policies that improve the lives of people living with a rare disease and their families. \nECRD 2026 is expected to unite over 500 participants in Prague\, with an additional 300+ joining online. Thanks to its hybrid format\, the conference will provide an unparalleled platform for connection and collaboration\, enabling participants across the rare disease community to exchange knowledge\, share experiences\, and build partnerships. \nPatient groups\, academics\, healthcare professionals and other interested parties who have conducted research or studies on rare diseases or public health projects are encouraged to submit a poster abstract for the ECRD 2026. \nThe submission form and detailed information on the guidelines and criteria can be found here.
URL:https://www.bbmri-eric.eu/events/european-conference-on-rare-diseases-and-orphan-products-ecrd-2026/
LOCATION:Prague & online
CATEGORIES:Conference
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