BBMRI-ERIC

Online Workshop Day 1: Participant engagement in longitudinal population studies/cohorts
2021-10-12 14:00 - 16:00 (Europe/Paris) | Online
This webinar takes places over 2 days, for 2 hours each:
Day 1: October 12th, 2021. 14:00-16:00h (CEST)
Day 2: October 14th, 2021. 14:00-16:00h (CEST)
You are welcome to attend either or both sessions!

Description: Retaining several generations of participants in longitudinal cohorts and ensuring that the participants continuously contribute with new data and support data sharing, is challenging. Participants gradually drop out, do not respond to data collection requests, or simply lose interest in the study. Young people, disadvantaged socio-economic groups, and ethnic minorities are particularly difficult to retain for a long period of time.
Participant engagement aims to maintain the interest of participants in the study and encourage their participation and commitment over its lifetime. European cohorts are gradually developing participant engagement strategies including innovative tools for recruitment and informed consent collection, data collection and ongoing communication with, and involvement of, participants. At this digital workshop, the strategies of key European cohorts will be presented and discussed, and experiences exchanged. Work conducted to map participant engagement strategies in European cohorts will also be presented. The workshop is jointly organized by BBMRI-ERIC and Biobank Norway.

Agenda:
Day 1. October 12th, 2021. 14:00-16:00 CET.

14:00
Welcome
Isabelle-Budin Ljøsne (Biobank Norway)
Mónica Cano Abadía (BBMRI-ERIC)

14:10
Topic 1: Recruiting participants across several generations
Speaker: Lynn Molloy, ALSPAC, UK
Short Q&A

14:35
Topic 2: Community Engagement / Coproduction and Citizen Science
Speaker: Aamnah Rahman, Research Fellow and Shahid Islam, Senior Research Fellow, Born in Bradford, UK
Short Q&A

15:00
Topic 3: Recruiting and engaging participants in a web-based cohort
Speaker: Costanza Pizzi, NINFEA (Nascita e INFanzia: gli Effetti dell’Ambiente), Italy
Short Q&A

15:25
Q&A + Exchange

16:00
Closure

Day 2. October 14th, 2021. 14:00-16:00 CET.

14:00

Topic 4: Returning actionable research results to cohort participants
Speaker: Shona Kerr, VIKING GENES, UK
Short Q&A

14:25
Topic 5: Engaging with cohorts of young participants
Speaker: Ana Cristina Santos, Geração 21, Portugal
Short Q&A

14:50
Topic 6: Participant engagement in times of pandemic
Speaker: Robin Flaig, Clare Dolan and Rachel Edwards, Generation Scotland, UK
Short Q&A

15:15
Mapping participant engagement in European cohorts
Speaker: Isabelle Budin-Ljøsne, Norwegian Institute of Public Health and Biobank Norway, Norway

15:35
Q&A + Exchange

16:00
Closure

Websites of cohorts
ALSPAC: http://www.bristol.ac.uk/alspac/
Born in Bradford: https://borninbradford.nhs.uk/
NINFEA: https://www.progettoninfea.it/index_en
VIKING GENES: https://www.ed.ac.uk/viking
Geração 21: https://www.geracao21.com/en/
Generation Scotland: https://www.ed.ac.uk/generation-scotland

View the recordings for Day 1 and Day 2.

Pre-Analytical Phases of Biobanking, Part 1: Phlebotomy
2021-10-13 10:00 - 12:00
The pre-analytical phase is crucial when handling specimen. Issues that arise even before samples arrive in the laboratory and further route to the biobank play an important role. Errors can occur during the pre-analytical phase with specimen handling and identification. Therefore, the pre-analytical phase must have strict quality assurance and control measures in place.
Key expert Dr. Łukasz Kozera will present in this webinar the most novel key elements of phlebotomy, coordinated laboratory and biobanking activities including patient preparation and the science behind the pre-analytical phase; these are currently important and will play an even more important role in the future of biomedical research. Dr. Kozera will provide balanced content between the latest science and good everyday practice.
Register here to receive webinar details: https://register.gotowebinar.com/register/8402489166331653132
Please send your questions, comments and feedback to: ulrike.rohrer@bbmri-eric.eu

Online Workshop Day 2: Participant engagement in longitudinal population studies/cohorts
2021-10-14 14:00 - 16:00
This webinar takes places over 2 days, for 2 hours each:
Day 1: October 12th, 2021. 14:00-16:00h (CEST)
Day 2: October 14th, 2021. 14:00-16:00h (CEST)
You are welcome to attend either or both sessions!

Description: Retaining several generations of participants in longitudinal cohorts and ensuring that the participants continuously contribute with new data and support data sharing, is challenging. Participants gradually drop out, do not respond to data collection requests, or simply lose interest in the study. Young people, disadvantaged socio-economic groups, and ethnic minorities are particularly difficult to retain for a long period of time.
Participant engagement aims to maintain the interest of participants in the study and encourage their participation and commitment over its lifetime. European cohorts are gradually developing participant engagement strategies including innovative tools for recruitment and informed consent collection, data collection and ongoing communication with, and involvement of, participants. At this digital workshop, the strategies of key European cohorts will be presented and discussed, and experiences exchanged. Work conducted to map participant engagement strategies in European cohorts will also be presented. The workshop is jointly organized by BBMRI-ERIC and Biobank Norway.

Agenda:
Day 1. October 12th, 2021. 14:00-16:00 CET.

Day 2. October 14th, 2021. 14:00-16:00 CET.

14:00

Topic 4: Returning actionable research results to cohort participants
Speaker: Shona Kerr, VIKING GENES, UK
Short Q&A

14:25
Topic 5: Engaging with cohorts of young participants
Speaker: Ana Cristina Santos, Geração 21, Portugal
Short Q&A

14:50
Topic 6: Participant engagement in times of pandemic
Speaker: Robin Flaig, Clare Dolan and Rachel Edwards, Generation Scotland, UK
Short Q&A

15:15
Mapping participant engagement in European cohorts
Speaker: Isabelle Budin-Ljøsne, Norwegian Institute of Public Health and Biobank Norway, Norway

15:35
Q&A + Exchange

16:00
Closure

Websites of cohorts
ALSPAC: http://www.bristol.ac.uk/alspac/
Born in Bradford: https://borninbradford.nhs.uk/
NINFEA: https://www.progettoninfea.it/index_en
VIKING GENES: https://www.ed.ac.uk/viking
Geração 21: https://www.geracao21.com/en/
Generation Scotland: https://www.ed.ac.uk/generation-scotland

View the recordings for Day 1 and Day 2.

Pre-Analytical Phases of Biobanking, Part 2: Lab – Sample Fractionation
2021-10-20 10:00 - 12:00
The pre-analytic phase is crucial when handling specimen. Issues that arise even before samples arrive in the laboratory and further to the biobank play an important role. Errors can occur during the pre-analytical phase with specimen handling and identification. Therefore, the pre-analytical phase must have strict quality assurance and control measures in place.
Key expert Dr. Łukasz Kozera will present in this webinar the most novel key elements of laboratory and biobanking activities, from sample transportation to fractionation including centrifugation and time limits; these are currently important and will play an even more important role in the future of biomedical research. Dr. Kozera will provide balanced content between the latest science and good everyday practice.
Register here to receive webinar details: https://register.gotowebinar.com/register/3528058351814847502
Please send your questions, comments and feedback to: ulrike.rohrer@bbmri-eric.eu

Pre-Analytical Phases of Biobanking, Part 3: Science behind the pre-analytical phase, quality assurance schemes in biobanking
2021-10-27 10:00 - 12:00
The pre-analytical phase is crucial when handling specimen. Issues that arise even before samples arrive in the laboratory and further route to the biobank play an important role. Errors can occur during the pre-analytical phase with specimen handling and identification. Therefore, the pre-analytical phase must have strict quality assurance and control measures in place to prevent errors and allow qualification of samples for research protocols.
Key expert Dr. Łukasz Kozera will present in this webinar the most novel key elements of phlebotomy, coordinated laboratory and biobanking activities including patient preparation and the science behind the pre-analytical phase; these are currently important and will play an even more important role in the future of biomedical research. Dr. Kozera will provide balanced content between the latest science and good everyday practice.
BBMRI-ERIC is in the process of applying for CME accreditation for this programme. Information will be updated accordingly.
Register here to receive webinar details: https://register.gotowebinar.com/register/8402489166331653132
Please send your questions, comments and feedback to: ulrike.rohrer@bbmri-eric.eu
