The mission of the TF Societal Issues is to provide reliable, feasible and practical knowledge on social matters related to biobanking for the immediate benefit of the community. In building on state-of-the-art research and in learning from best practices, the Task Force develops practical guidance for current challenges in the field.
The TF uses reliable research to develop practical knowledge in
Currently, the task force collects experiences and best practices for managing incidental findings. If you want to participate, contact us! Together with our colleagues at BBMRI.nl, we have put together a package of resources on incidental findings here:
A previous activity of the TF was the successful completion of the “Data in Question” survey (published in PLOS ONE), which builds the basis for the How-to Guide: Governance in Biobanking. The findings of the survey are currently deepened in a qualitative follow-up study.
The TF consists of experts from BBMRI National Nodes and beyond. Their expertise encompasses a wide range of topics in the field of ethics and social sciences.
Dr. Melanie Goisauf