We organise collaborative and joint responses to public consultations that concern ethical, legal and societal aspects in biobanking and the life sciences. We gather country and stakeholder specific views via our National Nodes and ELSI expert network. Ultimately, we generate a consensus reply that represents all our Member and Observer countries, which can highlight some country and context specific concerns individually. Where appropriate, we collaborate with other societies, organizations and research infrastructures.
Currently, we are assessing the Guidelines 2/2020 on articles 46 (2) (a) and 46 (3) (b) of Regulation 2016/679 for transfers of personal data between EEA and non-EEA public authorities and bodies — proposal for a legislative framework for the governance of common European data spaces (deadline July 31).
For past responses to public consultations, see here.
Dr. Michaela Th. Mayrhofer