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“The attitudes toward biobanks in Europe are overall positive. However, most biobanks remain largely unknown to the public. It is crucial for biobanks to pro-actively engage in an on-going dialogue with the public.”

BBMRI ELSI Working Group 2013

Contact person for media inquiries:

contact@bbmri-eric.eu

 

 

All Download Categories

BBMRI-ERIC Documents

BBMRI-ERIC Code of Conduct Webinar

The EU General Data Protection Regulation, Answers to Frequently Asked Questions 2.0

Ethics Review of European Biobank Research: Towards Mutual RECognition?

BBMRI-ERIC Partner Charter

BBMRI Stakeholder's Forum Meeting Report: A Step Closer (June 2010)

BBMRI Stakeholder's Forum Meeting Report: Building a Biobanking Research Infrastructure for Europe (September 2009)

BBMRI Stakeholder's Forum Meeting Report (March 2009)

Presskit

Work Programme 2017

Statutes Rev. 2

BBMRI-ERIC Statutes

BBMRI-ERIC Statutes Rev2 EN

BBMRI-ERIC Statutes Rev2 BG

BBMRI-ERIC Statutes Rev2 CR

BBMRI-ERIC Statutes Rev2 CZ

BBMRI-ERIC Statutes Rev2 DE

BBMRI-ERIC Statutes Rev2 DK

BBMRI-ERIC Statutes Rev2 EE

BBMRI-ERIC Statutes Rev2 ES

BBMRI-ERIC Statutes Rev2 FI

BBMRI-ERIC Statutes Rev2 FR

BBMRI-ERIC Statutes Rev2 GR

BBMRI-ERIC Statutes Rev2 HU

BBMRI-ERIC Statutes Rev2 IT

BBMRI-ERIC Statutes Rev2 LT

BBMRI-ERIC Statutes Rev2 LV

BBMRI-ERIC Statutes Rev2 MT

BBMRI-ERIC Statutes Rev2 NL

BBMRI-ERIC Statutes Rev2 PL

BBMRI-ERIC Statutes Rev2 PT

BBMRI-ERIC Statutes Rev2 RO

BBMRI-ERIC Statutes Rev2 SE

BBMRI-ERIC Statutes Rev2 SK

BBMRI-ERIC Statutes Rev2 SL

BBMRI-ERIC Work Programmes

Work Programme 2017

BBMRI-ERIC Annual and Financial Reports

2016 Annual and Financial Report

Annual and Financial Report 2015

Standard Contracts (e.g., MTA/DTAs)

RD-Connect MTA/DTA

LPC MTA/DTA

Scientific Publications

Four simple recommendations to encourage best practices in research software

A combination of routine blood analytes predicts fitness decrement in elderly endurance athletes (2017)

Bridging the translational innovation gap through good biomarker practice (2017)

Microbiology Managers: Managerial Training in the RItrain Project (2017)

The impact of the EU general data protection regulation on scientific research (2017)

We must urgently clarify data-sharing rules (2017)

BBMRI-ERIC Directory: 515 Biobanks with Over 60 Million Biological Samples (2016)

The alliance between genetic biobanks and patient organisations: the experience of the telethon network of genetic biobanks (2016)

Toward Global Biobank Integration by Implementation of the Minimum Information About BIobank Data Sharing (MIABIS 2.0) (2016)

Bundesgesundheitsblatt: BBMRI-ERIC: the novel gateway to biobanks (2016)

Design and Implementation of the Advanced Cloud Privacy Threat Modeling (2016)

Time-course pattern of blood 25-hydroxycholecalciferol is a significant predictor of survival outcome in metastatic colorectal cancer: a clinical practice-based study, in: Neoplasma (2015)

Biobanks in Europe - Seeking for Tissue, Funding and Regulations

Sharing and Reuse of Sensitive Data and Samples: Supporting Researchers in Identifying Ethical and Legal Requirements (2015)

Biobanking from the patient perspective (2015)

Biobank registries in Europe struggle with similar challenges (2015)

Developing a guideline to standardize the citation of bioresources in journal articles (CoBRA) (2015)

Toward a common language for biobanking (2015)

The donor as partner (2014)

BBMRI-ERIC as a resource for pharmaceutical and life science industries: the development of biobank-based Expert Centres (2014)

ERIC: a new governance tool for Biobanking (2014)

Biobanks need Publicity (2011)

Minimum information about a protein affinity reagent (MIAPAR) (2010)

Biobank governance in the post-genomic age (2010)

Comprehensive Catalog of European Biobanks (2010)

Harmonisation and standardisation in ethics and governance: conceptual and practical changes (2009)

Biobanking for Europe (2008)

BBMRI-ERIC in the Media

*Research Europe: Group plans guidance on personal data use (February 2017)

woche.at Lange Nacht der Forschung im ZWT (April 2016)

medianet.at: Biobanken im weltweiten Netz - page 71 (January 2016)

The Irish Times: Tissue storage could help to identify risks of pre-eclampsia (January 2016)

Nature Magazine: European medical research escapes stifling privacy laws (December 2015)

Netzwert Magazine: Graz ist "City of Biobanking" (October 2015)

H2020 Project Magazine: Adopting a Gateway for Health (July 2015)

The Irish Times: New data protection rules threaten vital health research. (20 July 2015)

Nature Magazine: Data overprotection. Draft European rules governing privacy threaten to hamper medical research. (23 June 2015)

Biomedcentral.com: Developing a guideline to standardize the citation of bioresources in journal articles (CoBRA). (17 February 2015)

sciencedirect.com: Privacy Threat Modeling for Emerging BiobankClouds (2014)

Medizin-Aspekte.de: Nationales Biobanken-Symposium stärkt die Zusammenarbeit in der Biobanken-Forschung (3 December 2014)

ISS.it: Lo stato dell'arte delle Infrastrutture per la Ricerca traslazionale in un convegno all'ISS (28 November 2014)

WHO.int: A call for global governance of biobanks (24 November 2014)

Nature.com: BBMRI-ERIC as a resource for pharmaceutical and life science industries: the development of biobank-based Expert Centres (19 November 2014)

QuotidianoSanita.it: Conferenza Stato-Regioni/1. Il testo del Piano nazionale malattie rare 2013-2016 (13 October 2014)

Research Europe: BBMRI-Eric: The European hub for biobanks (10 October 2014)

ScienceDirect.com: The locked genomes: A perspective from Arabia (28 September 2014)

Lääkärilehti.fi: Biopankkien yhteistyö tuo mahdollisuuksia potilaiden yksilölliseen hoitoon (25 September 2014)

Nature.com: International Charter of principles for sharing bio-specimens and data (24 September 2014)

THL.fi: Cooperation between biobanks creates basis for personalised medicine (24 September 2014)

ScienceDirect.com: Privacy Threat Modeling for Emerging BiobankClouds (15 September 2014)

H2020 Newsroom Editor: Biospecimens beyond Borders (1 July 2014)

Le Monde: Les biobanques, l'outil d'une médecine sur-mesure (16 June 2014)

Global Science Collaboration: The BBMRI-ERIC Inauguration Conference (18 September 2013)

Nature Magazine: On the up. The soaring incidence of diabetes is driving the United Arab Emirates' science ambitions (15 February 2012)

FT Science with Clive Cooksen: biobanking, education and disease (Podcast) (26 October 2010)

Medical Device Network.com: BBMRI. The Industry Perspective (4 October 2010)

Pharmaceutical Technology: New breakthroughs? You can biobank on it (4 August 2010)

Nature Magazine Editorial: Biobanks need pharma (24 September 2009)

Euractiv: EU 'biobank' first to benefit from VAT exemption (17 September 2009)

Time Magazine: 10 Ideas Changing the World Right Now. 8. Biobanks (12 March 2009)

Press Releases

ISC, BBMRI-ERIC’s contribution to health research capacity building in Africa (March 2017)

ISC, Summary Report on the BBMRI-ERIC Working Meeting on Health and Life Sciences GDPR Code of Conduct (22 February 2017)

ISC, BBMRI-ERIC seminar: "BBMRI-ERIC's role and contribution to the implementation of the Cloud" (17 January 2017)

ISC, Global Biobank Week: Toward Harmony in Biobanking (13 January 2017)

ISC, A big step towards personalised medicine: CBmed appointed first Expert Centre of European Biobanks; (18 July 2016)

CORDIS, Europe Biobank Week: Bringing the European biobanking community together to discuss health innovation; 13-16 September 2016 (4 July 2016)

IBBL, A new plasma quality control assay for metabolomics (21 June 2016)

ISC, Data science poised to unlock major health discoveries in Ireland and Europe (7 January 2016)

CORDIS, UK joins the EU's biobanking research infrastructure (15 July 2015)

Test TitelTHL, Cooperation between biobanks creates basis for personalised medicine (24 September 2014)

Biorepositoryhub, BBMRI-ERIC report highlights the need for biobanks to engage with the public (1 July 2014)

APA, Biobanken sollen von Graz aus koordiniert werden (20 September 2013)

Biobanks Europe Magazine

Biobanks Europe No. 7/2017

Biobanks Europe No. 6/2017

Biobanks Europe No. 5/2016

Biobanks Europe No. 4/2016

Biobanks Europe No. 3/2015

Biobanks Europe No. 2/2015

Biobanks Europe No. 1/2015

BBMRI-ERIC e-Newsflashes 2017

#35 June

#34 May

#33 April

#32 March

#31 February

#30 January

BBMRI-ERIC e-Newsflashes 2016

#29 December

#28 November

#27 October

#26 September

#25 August

#24 June

#23 May

#22 April

#21 March

#20 February

#19 January

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