BBRMI-ERIC has been working tirelessly to understand the future of health research in the changing panorama of data governance and EU funding. As part of this effort, a seminar aimed at triggering a broad debate around the GDPR Code of Conduct for Health Research and its implications for FP9 took place in Brussels on the 6th November 2017. Focussing on the use of personal data for existing and future health research, the seminar was divided into three sessions, each with its specific key objectives:
Oversubscription and high cost of participation: the success rate for FP9 must be higher to justify the time/resources used to produce unsuccessful proposals;
More coordination with national funding: EU and national funders must come together to agree on research priorities, thus maximising the impact of their funding;
Open access: FP9 and its sister programmes like IMI2 shall embrace the concept of FAIR data sharing (data generated by EU-funded projects should be Findable, Accessible, Interoperable and Reusable) and better promote open access to publications generated by EU projects to maximise the input of publicly funded research.
The seminar generated considerable interest among the health research community, bringing together 70 attendees including EU policy-makers, legal experts and practitioners, industry, patient representatives, research organisations and medical societies.