In this issue, Anna-Sara Lind gives us an update on the what the final results of the negotiations for a general data protection regulation in the European Union. You can also read about two papers: The first compares the risks associated with handling personal data in research to the benefits in terms of patient safety if individuals can be identified. The other suggests that it is not (yet) feasible for European research to give feedback of individual results. One reason is the lack of legal frameworks, guidelines and resources to support the feedback process.You can also read about the BBMRI-ERIC call for ELSI experts and find out how to choose good bioethics journals. Please click here for full newsletter or the website.
Constructive advise is provided on how to deal with the ethical and legal aspects of research on samples and data for more than a decade. Please find an updated version of the report on ethical and legal aspects of biobank and registry research with abstracts.