FontsA A
ContrastA A
Newsletter sign-up
I agree with the regular receipt of the newsletter of BBMRI-ERIC. The subscription to the newsletter can be canceled at any time (see privacy notice) )
  • Blog
  • FAQ
  • Downloads
  • Home
x

bbmri-eric website

  • About
    • National Nodes
    • Governance
    • Stakeholder Forum
    • Expert Centres
    • Staff
    • Vacancies
    • Intranet
  • Services & Support
    • Directory
    • Sample/Data Negotiator
    • Sample/Data Locator
    • Quality Management
    • ELSI
    • GDPR Code of Conduct
  • EU Grants
    • ADOPT BBMRI-ERIC
      • Colorectal Cancer Cohort
    • AARC2
    • B3Africa
    • CETOCOEN Excellence
    • cliniMARK
    • CORBEL
    • EDIReX
    • EGI-Engage
    • EOSC-hub
    • EOSCpilot
    • ID-EPTRI
    • PhenoMeNal
    • RD-Connect
    • RItrain
    • SPIDIA4P
    • Completed Projects
  • News & Events
  • Contact
Home  - News & Events Overview  -  BBMRI.se: BIOBANK PERSPECTIVES NEWSLETTER  
  • About
    • National Nodes
    • Governance
    • Stakeholder Forum
    • Expert Centres
    • Staff
    • Vacancies
    • Intranet
  • Services & Support
    • Directory
    • Sample/Data Negotiator
    • Sample/Data Locator
    • Quality Management
    • ELSI
    • GDPR Code of Conduct
  • EU Grants
    • ADOPT BBMRI-ERIC
      • Colorectal Cancer Cohort
    • AARC2
    • B3Africa
    • CETOCOEN Excellence
    • cliniMARK
    • CORBEL
    • EDIReX
    • EGI-Engage
    • EOSC-hub
    • EOSCpilot
    • ID-EPTRI
    • PhenoMeNal
    • RD-Connect
    • RItrain
    • SPIDIA4P
    • Completed Projects
  • News & Events
  • Contact
  • Blog
  • FAQ
  • Downloads
  • Home

I am looking for information as

Researcher

  • Looking for biobanks
  • Looking for samples & data
  • Looking for trusted partners (Expert Centres)
  • Looking for ELSI guidance
  • Looking for scientific collaboration
  • Looking for advice on standardisation
  • Looking for info on projects
  • Looking for scientific publications

Industry

  • Looking for biobanks
  • Looking for trusted partners (Expert Centres)
  • Looking for samples & data
  • Looking for advice on standardisation
  • Looking for scientific collaboration

Patient

  • Working with patient organisations
  • About ethics, rights & societal issues
  • Looking for general information on BBMRI-ERIC
  • About our scientific collaboration

Citizen

  • FAQs (what is a sample, what is a biobank)
  • Looking for biobanks in your country

Member States

  • Looking for information on your country
  • How to become a Member
  • Looking for reports and statutes
  • Looking for samples & data

BBMRI.se: BIOBANK PERSPECTIVES NEWSLETTER

In this issue, Jane Reichel gives us her view on how the EU-US Privacy Shield will ensure safe harbours for data transfer in the future. We also report how direct-to-consumer genetic testing companies lack clear consent procedures for biobanking and research. Soon, these tests might become difficult to market and offer in Europe, with the European Commission proposing changes to the European Directive on in vitro diagnostic medical devices.

You can also read about challenges to informed consent posed by rare disease research and how RD-Connect researchers proposes to meet them. Finally, on behalf of the CHIPme COST Action network, we invite you to a workshop on genetic data in public research databases in Bolzano, Italy, this spring.

Issue 1/2016

Show me:

  • ALL News & Events
  • Press Release
  • Quality
  • Events
  • Scientific Publications
  • News
  • Vacancies
  • ELSI
  • Projects
  • Web Conferences

This website was co-funded within ADOPT BBMRI-ERIC, a project that has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 676550.

Neue Stiftingtalstrasse 2/B/6
8010 Graz, Austria

Phone: +43 316 34 99 17-0
Fax: +43 316 34 99 17-99
Mail: contact@bbmri-eric.eu

 

 

Favourites

  • About us
  • News & Events
  • Publications

Quicklinks

  • Directory
  • Negotiator
  • National Nodes

How to find us

Newsletter sign-up

I agree with the regular receipt of the newsletter of BBMRI-ERIC. The subscription to the newsletter can be canceled at any time (see privacy notice) )

Follow us

rss feed
(c) BBMRI-ERIC® - Legal Notice - Privacy Notice
TOP
Website by Werbeagentur Rubikon
We use cookies to analyse the traffic on our websites. All personal data is anonymized and not shared with third parties! Click here for more information.
Accept