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Common Service ELSI

What is the ELSI service about?

BBMRI-ERIC provides tools and expertise, as well as knowledge and sharing of experience regarding ethical, legal and societal issues for the biobanking community through its Common Service ELSI.

Find out more under ELSI Helpdesk.

 

How can I engage?

Sign up for the BBMRI-ERIC newsletter

 

Who to contact?

elsi@helpdesk.bbmri-eric.eu

 

GDPR

Frequently Asked Questions GDPR

Position Paper on the GDPR

 

ELSI-related papers:

Ethics Review of European Biobank Research: Towards Mutual RECognition?

ELSI Workshop report: Sharing and Access

 

As the proper consideration of ethical, legal and social issues (ELSI) is key to any biobanking activity, the Common Service ELSI is considered a key asset of BBMRI-ERIC.

The Common Service ELSI aims to facilitate and support cross-border exchanges of human biological resources and data attached for research uses, collaborations and sharing of knowledge, experiences and best practices.

 

Following a preparatory meeting, a call for tender and selection process in 2014, the Common Service ELSI was established in February 2015.

 

  • Provide an ethics check of compliance for research proposals submitted to BBMRI-­‐ ERIC in compliance with the BBMRI Business Plan and Statutes and with the European Commission research ethics framework;
  • Advise on a sound scientific/academic basis and experience in ethical reviews of European/international projects;
  • Provide solid monitoring of ELSI issues related to biobanks and biobanking based on state of the art and deep knowledge of relevant ethical and legal frameworks in application;
  • Follow up relevant evolution in legislations/regulations at the European level and organise coordinated answers to relevant public consultations and other possible intervention to address joint matters for the biobanking community on the European level;

 

 

  • Provide updated background information and practical guidance to biobankers to respond to ELSI issues, especially in relation to the exchange of human samples and data for research use in Europe (“Help-Desk”);
  • Ensure the dissemination of results of relevant surveys and studies toward the various audiences;
  • Organise tools and services to address ELSI issues related to biobanks and biobanking by building on already available tools and generating new ones if necessary;
  • Organise experience sharing and exchanges regarding ELSI aspects between BBMRI-­ERIC members;
  • Set up training and education on ELSI issues related to biobanks and biobanking.

 

INTERIM COORDINATING DIRECTOR

Mats G. Hansson

CO-DIRECTOR

Marialuisa Lavitrano

CO-DIRECTOR

Jasper Bovenberg

CONTRIBUTING EXPERT FROM A NATIONAL NODE

Sabine Bavamian

ELSI TEAM

Sara Casati

ELSI TEAM

Gauthier Chassang

ELSI TEAM

Victoria Chico

CONTRIBUTING EXPERT FROM A NATIONAL NODE

Christine Currat

ELSI TEAM

Anna Durnova

ELSI TEAM

Hilde Eikemo

ELSI TEAM

Melanie Goisauf

ELSI TEAM

Jasjote Grewal

ELSI TEAM

Radek Halouzka

ELSI TEAM

Heidi Carmen Howard

ELSI TEAM

Isabelle Huys

CONTRIBUTING EXPERT FROM A NATIONAL NODE

Roland Jahns

CONTRIBUTING EXPERT FROM A NATIONAL NODE

Jane Kaye

ELSI TEAM

Liis Leitsalu

ELSI TEAM

Gillian Martin

CONTRIBUTING EXPERT FROM A NATIONAL NODE

Deborah Mascalzoni

ELSI TEAM

Michaela Th. Mayrhofer

CONTRIBUTING EXPERT FROM A NATIONAL NODE

Maimuna Mendy

ELSI TEAM

Signe Mezinska

ELSI TEAM

Alison Parry-Jones

ELSI TEAM

Jakub Pawlikowski

CONTRIBUTING EXPERT FROM A NATIONAL NODE

Emmanuelle Rial-Sebbag

CONTRIBUTING EXPERT FROM A NATIONAL NODE

Isabelle Salmon

ELSI TEAM

Irene Schlünder

CONTRIBUTING EXPERT FROM A NATIONAL NODE

Chiara Scoccianti

ELSI TEAM

Santa Slokenberga

CONTRIBUTING EXPERT FROM A NATIONAL NODE

Sirpa Soini

ELSI TEAM

Berge Solberg

ELSI TEAM

Tom Southerington

ELSI TEAM

Olga Tzortzatou

Former Contributors

Martin Boeckhout
ELSI TEAM

Anne Cambon-Thomsen
COORDINATING DIRECTOR from 2015 until 2017

Moa Kindström Dahlin
ELSI TEAM

Myriam Remmelink
ELSI TEAM

Maria del Rosario Sánchez-Albor
ELSI TEAM

Vents Silis
ELSI TEAM

Johannes Starkbaum
ELSI TEAM


This website was co-funded within ADOPT BBMRI-ERIC, a project that has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 676550.
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